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Apr 28-May 04

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Tomorrow is Sloane’s birthday…March 5. 

Today will be my last post on here. 

This has been the absolute worst. Losing Sloane to a brain tumor has shattered me in a way that I couldn’t even fathom a year ago. Last year she had a “quarantine” birthday party. This year we will be having a celebration of life. I would take a 1000 quarantine parties over 1 celebration of life. 

The girls wanted to have a party for Sloane. The same families are coming over this year who helped her celebrate her special day last year.  We have a cake. We bought biodegradable balloons, cards, and string to send messages to her.  We are going to see Cinderella tomorrow night. We are going to try our best to get through the day. 

If you can, please do something to make someone smile tomorrow. Sloane’s smile was the best, she smiled with her whole face, her whole body really. I hope others can feel her love…she loved fiercely, just like she fought. 

I have started to blog on our website. Right now, my writings are sad, filled with longing and heartache. I hope with time, my writing will change. I hope with time, I can find a way to live in this. 

I will continue to post on our pages, On Brave Wings and my personal page, both on Facebook and Instagram. Please follow us there for what is happening in our lives and how we are creating a legacy for Sloane. 

Also, take a look at our website, www.onbravewings.org. This is my mission now…spreading awareness about pediatric chordoma, holding fundraisers to fund research and helping families like us. I don’t know any other way to be than this. 

This is the hardest thing I have ever done…being a mom and wife, sister and daughter, friend and supporter while I am silently, completely broken and dying inside. 

Thank you, every one of you, for being on this  journey with us. Cheering for the good and crying with us for the bad. Sending prayers and good vibes. I wish they would have worked. I wish it had been enough. I wish she would have been saved and been able to live and love and thrive. I love you all for being there for us, for Sloane. 

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