Sita’s Story

Site created on October 29, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. 

Sita has been following some health issues, specifically sinus headaches, that led her to a specialist. After many tests, she was diagnosed with an extremely rare sinus cancer. The good news is that we have an amazing, world renowned team of doctors at Johns Hopkins who will be handling her medical care.  She's a fighter and she's strong and she's about to show cancer that it messed with the wrong woman!

From Sita:  I also think, as difficult as it is for me at times to share so openly in “public,” I will probably be fairly candid about this journey. Some of it might be hard to share or hear. But I have been inspired and encouraged by other women who have openly shared about their cancer journeys and it has made me feel brave enough to face mine and to share about it. Thank you all for your love and support.

Newest Update

Journal entry by MamaSita Romero

Appointment Update:
I followed up today with my OG Doctor at Hopkins. We've become close since he's been scoping up my nose to look at tumors. Even though I hear the Covid testing is no fun, it kind of sounds like a walk in the park compared to tumor-gazing through the nostril. 
Anyway, he basically followed up with everything the neurosurgeon already told us...Oncology will take the lead first and hopefully the tumor shrinks enough that surgery won't be necessary at all. He confirmed the plan for Induction Chemotherapy and went over the newest studies that that support this treatment plan. Apparently, he also knows the doctors who wrote those papers and worked on those studies because they trained with him at Hopkins. 

He reviewed the PET scan and confirmed the findings. The tumor showed up. My lymph nodes were reactive but not likely involved in the cancer (Doc says they are a bit enflamed and I can blame him for the biopsy). There's a nodule on my thyroid that needs attention. 
Staging: Staging of the cancer is complicated because it's not a single number. The tumor itself is staged and then the involvement of lymph nodes and and metastasis is taken into account. The PET scan showed no involvement of cancer growth outside of my tumor and no involvement of lymph nodes. The tumor itself it at a higher stage simply because of the location of it. 

The plan: See an endocrinologist to follow up on the PET scan thyroid findings. He said I could see someone local for that.
Dr. I takes to the sideline right now and Dr. S takes the lead. I follow up with scans after chemo is over and then he gets to put his scope up my nose again (so fun!). 
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