Hi friends and family -

it’s been a while since we last updated but it’s Brain Cancer Awareness month and it lends the perfect time!  I am not going to make this super long winded, because I ABSOLUTLEY could, but here is the gist of what has been going on...

October - MRI shows "growth", Shawn gets ready for radiation, the family prepares to move to MN for 12 weeks, Shawn's neuro-oncologist reaches out, says CANCEL radiation, wants him to "watch and wait" for another 3 months

December/January - Shawn goes through the preliminary testing to be entered into a Phase 3 Double Blind clinical trial (INDIGO Study/AG-881), all systems were go, we found out Shawn was the LAST PERSON IN THE WORLD to be accepted into the trial….and then he got covid which cancelled his appointments at U of M, THEN during the second round of blood draws, his liver enzymes were too high to fit the parameters! Due to the nature of the trial, everything is very time sensitive and the doctors/trial team were not convinced he would be able to enter the trial after all. Push came to show, he waited the 10 days, and had to perform all testing AGAIN (including MRI) and was finally accepted into the trial. 

January - MRI shows NO NEW GROWTH, and trial drug is started (4 pills every day for a 28 day cycle, with bi-monthly blood draws and EKG at the Ravitz Research Center at U of M). 

May - Shawn has been in the trial for 3 cycles, and his last MRI on Mothers Day showed NO NEW GROWTH!!!

We are all so happy with these clear scans and we are so grateful for all of the continued prayers, good thoughts, and positive energy that is put out there toward Shawn. Thank you from the bottom of our hearts  ❤️

The Joneses