Shawn’s Story

Site created on June 15, 2018

Welcome to our CaringBridge site. We will be using it to keep family and friends updated in one place.  Be sure to use the "Journal // Gallery // Ways To Help" buttons at the top of the page and we'll update you as much as possible. 

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In mid April I ran the Richmond 10K. Afterwards, I experienced terrible chest pain I had never felt before. I self-diagnosed myself via Web MD with an inflamed sternum (I know, I know, not my best decision). After a few weeks the pain subsided and evolved into a chronic cough. After a visit to Patient First, the doctor concluded that I had a walking pneumonia. It was treated with a Z-Pack and figured I would be on my way. 

Then I received a follow up call a few days later. 

The call was from Patient First and their radiologist found more on the X-ray than what was initially suggested. They saw some swollen lymph nodes and wanted me to get some further tests done. May 18th, I had my first ever CT Scan. This was an interesting experience as the contrast dye makes you think you have peed yourself almost instantly. So weird.

On Saturday, May 19th I received the results that they had found a 9.4 cm mass in my chest that suggested possible lymphoma. That night, I turned back to WebMD for a series of fear inducing articles that failed to help my thought patterns. 

May 25th we met with my oncologist for the first time. Based on the CT results, she was shocked that I was operating as normal as I was, and expected to send me to the ER immediately after seeing me due to the size and location of the mass. 

I then began to endure the loads of tests they perform in an attempt to diagnose the issue. 

First I had more blood drawn than I ever have had before to check all of my labs. Second, I had my bone marrow drawn. This was just as unpleasant as you probably heard it is. OUCH. Next, I had an EKG to ensure my heart was healthy enough for treatment. That Friday, I had my biopsy. Outside of my wisdom teeth, this is the first surgery I've ever had, but we wouldn't get results for atleast another week. 

Then we found out the tissue that was pulled from the mass was way more difficult to read than the surgeon anticipated due to its fibrousness. INOVA is an incredible hospital, but they still had to send it to a tumor review board at the NIH (National Institute of Health). Thankfully their team was able to come to a conclusion. 

On June 14th I received my diagnosis of Stage 2 Primary Mediastinal B-Cell Lymphoma. 

So now comes the treatment. Treatments will consist of 6 cycles of R-EPOCH. A cycle consists of 5-6 days of inpatient chemotherapy followed by two weeks of rest and then starting the cycle all over again. This will probably go through September. These treatments are aggressive to treat the aggressive mass in my chest. 

Newest Update

Journal entry by Shawn Galla

It is hard to believe this entire journey started over six months ago. So much has happened in that time and we are so close to the end of this journey, but before I get to that just a reflection on what these past few months have consisted of:

2 X-rays.
1 CT scan.
2 surgeries.
2 PET scans.
6 bags of Rituxin (immunotherapy).
48 bags of Vinchristine / Doxarubicon / Etoposide (chemo drugs).
6 bags of Cytoxin (chemo drugs).
6 Neulasta shots.
24 nights / 30 days in the hospital.
7200mg of Prednisone (steroids).
44 blood draws.
1 blood clot.
188 shots of Lovenox (blood thinner).
Countless visits from Framily.
0 blood transfusions.
0 trips to the ER.
0 times throwing up.

Now for the question that everyone has been asking: “What’s next?”

I’ve spent the past three weeks recovering and allowing my mind and body adjust to life without chemotherapy. Thursday was the first day that I should have been in treatment, but instead I was at home with my family. My oncologist said it could be as long as 6 months before I get back to where I was mentally and physically prior to treatment. The good news: my hair is starting to come in even if it is clear and I’m starting to resemble a peach.

Tomorrow (10/22/18) I go for my first post-chemo PET scan and we will get the results when we meet with the oncologist on Thursday.

This scan will largely inform our next steps. If the mass and cancer is gone, we will look at getting the port removed and assume life as it used to be. If there is some residual mass or cancerous activity, we will look at the possibility of radiation. The primary concern from my oncologist, in regards to radiation, is the proximity of the mass to my major organs. Surgery still is not an option due to the same reasons.

I would be lying if I said I wasn’t anxious about this day, but we as a family are believing that we already have the report we are looking for… that the cancer is gone and healing is here.

While we have learned so much collectively during this season, we couldn’t be more excited to “turn the page” on this chapter of life. I asked Carlie the other day if we could set the Christmas tree up now so we could be closer to the end of the year. Not that we want to forget any of what we have walked through, but we are ready for the next season.

We would love it if you would join us in praying over these next few days for both my health and for our spirits in the waiting.


6
 Be strong and courageous. Do not be afraid or terrified because of them, for the LORD your God goes with you; he will never leave you nor forsake you.” Deuteronomy 31:6 

16 Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  17 For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  18 So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. 2 Corinthians 4:16-19

Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4 who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God. 5 For just as we share abundantly in the sufferings of Christ, so also our comfort abounds through Christ. 6 If we are distressed, it is for your comfort and salvation; if we are comforted, it is for your comfort, which produces in you patient endurance of the same sufferings we suffer. 2 Corinthians 1:3-6

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