Selah recently had another MRI done. I got to discuss that with her surgeon today. She has had multiple radiologists review it along with our neurologist and a spine surgeon. The spine surgeon said there was nothing on it that showed he could anything for her. So that’s good. It had made me a bit nervous when she said she wanted to have a spine surgeon look at it. Our neurologist said he could perhaps do a spinal tap of the edema they are seeing on the base of her spine but they didn’t think that was really a good option that would give any answers. Overall the MRIs are looking much better in regards to colitis and inflammation through out the pelvic floor. But the one thing that is staying consistent is an area that shows a size mismatch of the colon. Which implies the strong possibility of residual Hirschsprung’s disease. So we are basically back to where we were last December. Our surgeon (who we do really like and always has treated us very well) is again recommending to switch to an ileostomy bag, giving her colon a rest for awhile, eventually removing more colon and reattaching. We are going to exhaust one more option and get our second opinion at Motts next month. Right now, Selah can stool somewhat on her own but is still relying on about one enema a day to keep her colon healthy. Our surgeon suspects that they will give the same recommendation. But we would like to at least once, have a set of fresh eyes outside of Spectrum review her case. We are not sure what the next few weeks will hold or what a new doctor will say, but it’s looking like we will be doing more surgery in the near future. 

(PS- I hope this all make sense! I’m trying to condense a 40 minute conversation into a short paragraph so I leave quite a bit out!)