It has been almost 6 months since the last update and many of you have reached out to ask how things are going.  Things were fabulous in the post-surgery "honeymoon phase" and then in April...the honeymoon was over!  

After an agonizing and frustrating 5 months, we received a diagnosis of sorts from the neurologist.  He started with, "We have good news but it's not easy news."  The surgery was successful and Scott is not currently taking any Parkinson's medications.  However, his brain is not ready to give up the symptoms of Parkinson's and has thrown in a few more along the way.  The doctor equated it to "phantom arm", when someone loses a limb but still feels the pain as if the arm were still there. I have uploaded the diagram the doctor shared with us to help explain.

Essentially, Scott's thought processes need to be re-programmed.  He was evaluated at Shirley Ryan Ability Lab (formerly known as Rehabilitation Institute of Chicago) and will begin extensive therapies, speech, occupational, physical and psycho next week and it will continue until these symptoms subside.  

We continue to be hopeful and trust the process.  Thanks for checking in!