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May 05-11

This Week

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We have had quite a week. After returning from Minnesota, we scheduled appointments with all of our doctors in order to implement the multidisciplinary plan that the Mayo Clinic created for us to follow at home. We also had high hopes that the doctors would all give the green light for Scottie to return to work soon. Unfortunately, things took a turn for the worse on Tuesday. Scottie was receiving injections in the back of his head, nerve blockers, in order to help with the chronic migraines. While the needle was in his head, Scottie had an extremely severe seizure. This was by far the worst seizure I have ever seen. He was inaudibly screaming, violently shaking, foaming at the mouth, and was unable to breath - his lips, and then his entire face began to turn blue. After what seemed like an eternity, the seizure stopped, but Scottie wasn’t really coming to. His heartbeat was irregular and only one of his pupils was dilated to the size of his iris. He would look at me and his eyes would get big when I would say his name, but he couldn’t say anything or respond in any other way. This state lasted for some time. As he began to try to speak, it was obvious that he was struggling to form words. He looked terrified every time he saw the nurse, doctor, or when the door opened or slammed shut. It was over a half hour before he really came back to normal. The Neurologist at the Mayo Clinic was contacted. He believed the one eye dilation meant that Scottie had structural damage in his brain. Thankfully, there does not appear to be any structural damage at this time. Our doctor, who performed the injections, believes that the injection may have hit a nerve, causing the severe seizure and that Scottie may have also had lidocaine toxicity from the lidocaine entering his blood stream - since the needle was still in his head when the seizure began. The next few days have consisted of endless doctor appointments. UT Southwestern wants to get Scottie into another inpatient EEG, but we have to wait for an opening. Our rehabilitation doctor suggested that Scottie attend a day program for traumatic brain injuries, and our pain management specialist and neurologist have agreed. Scottie received his second round of Botox this morning, which will take three weeks to take effect, but we are very hopeful he will have better results this time around. Our neurologist/pain management specialist said she can not sign off on a return to work until Scottie completes the necessary evaluations in Physical and cognitive therapy. Those evaluations will take place next week. Hopefully after next week we will have a much better answer as to when Scottie can return to work and what our future holds. Thank you all for your continued prayers and incredible kindness towards our family. We are so grateful for all of the blessings God continues to bestow upon us.

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