Sam’s Story

Site created on May 6, 2017

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

As almost all of you who are reading this know, Sam likes to work. He likes a project. Actually, he likes several projects, all going on at the same time. He doesn't like to sit still, doesn't know how to relax, and he is most comfortable with some sort of tool in his hand. He likes to say, "These projects are my 'golf.'" 

He also likes to say,  "Life is too short..." 

Too short to hold grudges, too short to let the little things bother you, too short to let time pass without telling those you love, "I love you," and often.  

We understand that little phrase even better now.

A cancerous tumor was discovered after a routine colonoscopy, Sam's first one at age 67, and surgery was performed on Wednesday, May 17, 2017, to remove the tumor. Pathology results indicated that the cancer had spread to surrounding lymph nodes, so Sam went through six months of chemotherapy from late June-December and was given the "all clear" in January.

2017 was going to be a transition year for us, since Sam took a new job in north central Kansas, five hours from Kansas City. After purchasing a new home and making plans to make the slow move west permanent, this health adventure was not on the books. Transition year it was...

2018 went smoothly and return check-ups were just routine and cause for counting our blessings. That is, until September 21.  A follow-up visit revealed a new growth along the colon that was cancerous. So, colon cancer 2.0 began.

A second surgery took place in October 2018 to remove the growth much lower in the colon, which resulted in an ostomy and 12 more rounds of chemotherapy.  More cancer was discovered in Sam's liver and lungs, so a third surgery was performed in March 2019 to remove the cancer from his liver and reverse the ostomy, and chemotherapy was put on hold until he recovered. 

He completed the last six chemotherapy treatments in June 2019,  and at the completion, more pockets of cancer were discovered in lymph nodes and next to a posterior rib. 

Fall 2019 held unknowns after Sam went to The Mayo Clinic in Rochester, Minnesota for a second opinion. The result of those appointments were "keep on keeping on," along with a 3D CT that showed cancer that is "peppering" his lungs, suspicious spots on his spleen, 4 ribs, and another enlarged lymph node in his groin.  He resumed chemotherapy treatment with a stronger drug added in September 2019. He also underwent a prostate biopsy and is now dealing with aggressive prostate cancer that has metastasized to the bones alongside the metastasized colon cancer. Treatment now includes conventional chemotherapy, hormone therapy, and alternative therapy with a change in diet and lifestyle.

Sam was staged as 3b with recurring and metastasized colon cancer. Prostate cancer is stage 4 after an MRI and bone scan was done. His colon cancer had not cooperated up to this point, and as the oncologist explained to us, “It keeps popping up in random places throughout your body, and if you do not continue chemotherapy, we will not be able to keep it contained.” Both of his oncologists shared that 2 1/2 years later, “the chemotherapy is no longer eradicating the cancer, but the goal now is to extend his life." 


UPDATE! Sam is now over 4 years on this journey...we are trusting that God has the best plan and every day is a gift and an opportunity to do better.  And in July 2021, after the third set of CT scans were done this year showing no signs of colon cancer left in his body, the doctor cautiously declared Sam just might be cured of the colon cancer! He will be monitored every three months for the next two years, but we are THANKING GOD for this incredible update and relief from chemotherapy and cancer!

Thank you for taking the time to pray for Sam and let him know you're thinking of him as he continues this monumental personal "project."

Newest Update

Journal entry by Rhonda Scofield


Two years of living life and not really thinking much about the word "cancer" -- that describes Sam's world since the last update. Now in post-masked, post-COVID, post-colon cancer 2023, he has returned to what he enjoys most...projects.

In between assisting his new son-in-law with a remodeling construction project in Dallas and being hired in our neighborhood for various interior and exterior jobs, Sam has enjoyed fewer cancer center visits and has settled into a south Overland Park routine. He occasionally joins Dennis for breakfast at the nearby "Chick," sits on the front porch with his coffee, scrolling Marketplace for the best deals, makes multiple trips from home to Home Depot, and next week, he will join his nephew and great nephews riding motorcycles all around the Winter Park, Colorado, area. 

He is currently working on a basement remodel for a very nice couple. I don't know how he does it, but he always seems to envision a plan in his head, and it just seems to work out. This job is a big job, and there is no way Sam could do it on his own. But Sam does what Sam does, and as he was picking up supplies at the local Home Depot, he got into a conversation with a young part time employee who "gets it," and now Sam has someone young and strong to help him with his project. Earlier this extremely hot July week, Sam's good friend Cosmo stopped by and rather than work outside in the hot sun, he opted to stay and help Sam in the cool basement. It just seems to work out...    

Sam continues to have excellent CT scans, and his visits with Dr. Al-Rajabi include longer breaks between appointments, now every four months. We have come to expect great news with every visit - NED, no evidence of disease. Sam still takes all the supplements and the alternative FenBen on a daily basis. And I still sing this song in my head every time we enter through those doors:


Moved the unmovable, broke the unbreakable
God we believed, God we believed for it.
From the impossible, we saw a miracle
God we believed, God we believed for it!


Earlier in the spring, Sam met with Dr. Parikh, his urologist who is overseeing his prostate cancer. Sam has had a break from the Lupron injections and Xometa infusions, and it was time for new doses. His PSA has slowly begun to rise, and so the doctor ordered a PET scan so that he could have a better picture of what is happening. The PET scan showed cancer in the prostate, but the metastases to the bones were not lighting up as they had previously -- great news, once again!

Dr. Parikh, in his gentle, soft-spoken way, shared that because of these results, Sam now has some options to consider.

1. Radiation to the prostate, now that it looks like that is where the cancer is localized.
2. Surgical removal of the prostate. 
3. Continue with the hormone therapy and add Xtandi.
4. Take a full break with no treatment at all, and just see what happens while waiting it out.

Appointments were set up with a radiation oncologist and a urologic surgeon to explore these possibilities. We met with Dr. Xinglei Shen a few weeks ago to discuss radiation, and although we walked in thinking this was the least favorable option, Dr. Shen began to change our minds. He was another KU class act: kind, compassionate, took his time and did not make us feel rushed or pressured to make a decision. He already knew Sam's case and said the tumor board had discussed Sam at length over the course of his disease progression. When we left his office, we felt educated and assured once again that we were at the best place possible for treatment.

Yesterday was the appointment with Dr. Will Parker, the urologic surgeon. All along, I have not been afraid of surgery -- Sam has been there, done that, and it is what we know. Radiation is another ballgame and therefore, the "unknown." So, as his wife, I was fairly confident that this would be where Sam would eventually land. Just get it OUT. If the cancer is now localized, GET IT OUT. Dr. Parker walked in, very personable and confident, and after introductions and niceties were exchanged, he came right out and said, "I am probably going to tell you some things you were not expecting."

(Gulp.)

And then he went on to describe Sam's past 6 years and what he knew about Sam, sharing that he knows Sam's history very well. Sam is an anomaly at KU, and these cancer doctors don't see many miracles in their line of work, I guess. Dr. Parker matter-of-factly said, "I will not operate on you. If I did, I would hurt you more than I would help you."

Woah. What? 

He went on to explain that Sam has Stage 4 metastatic prostate cancer -- yes, we know -- and because those cancer cells have left the prostate, it does Sam no good for Dr. Parker to go in and remove the prostate, potentially causing more harm than good. Those cancer cells are in Sam's system, and to just remove the prostate does not remove the other cancer cells that are most likely still there. Because Sam's testosterone levels are so low right now and he has been on hormone therapy, those cancer cells are not "lighting up" on the PET scan, but as a surgeon and physician, he cannot definitively say they have been eradicated. In his experience, that is not the case. Dr. Parker said, "Don't get me wrong - I am a surgeon and I love to operate. But for YOU, Sam, radiation oncology is your best course of treatment at this stage. I will NOT take you into the operating room." 

Needless to say, we were very impressed, all over again. Sam's best interests are being considered, and although Dr. Parker will not be Sam's surgeon, we HIGHLY recommend him if anyone is ever in need of a urologic surgeon.

Next step: make plans to begin the radiation project.

Our devotion for yesterday was written just for Sam:

"...Help me walk through this perilous world in trusting dependence on You. I know that You go before me and open up the way, carefully preparing the path I will follow. I'm counting on You to remove many dangers and obstacles from the road ahead - and to provide all I need for coping with the difficulties that remain. Even when I walk through the darkest valley, I will not be afraid, for You are close beside me. Your nearness comforts and delights me. As I stay in communication with You, I trust You to guide me faithfully through this day - and all my days. For you are my God forever and ever; You will be my Guide even to the end." - July 13, Jesus Listens, by Sarah Young

This morning, I am overwhelmed by God's provision and hand on Sam's life. Once again, it all just seems to work out. Thank you, God. 

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