Sam’s Story

Site created on August 12, 2022

Sam,  Eliza, and I developed COVID in early April after attending not one--but two--Hurt family super-spreader birthday parties. Shortly after recovering from COVID, Sam noticed a lump on the right side of his neck. "It a COVID thing," I said confidently, "totally normal." Sam fact-checked my armchair diagnosis with a quick search on Google. Indeed, COVID does cause all sorts of lumps.  We moved on. Yet, a few weeks later, when Sam saw his primary care doc for a post-COVID sinus infection, the lump was still there. She thought it probably was a COVID thing or a sinus infection thing but advised him to follow up in 3-4 weeks if it had not gone away. While the lump did seem to retreat a bit with antibiotics (wishful thinking?), it did not go away so Sam was sent for an ultrasound 4 weeks later. The ultrasound tech said she "had never seen anything like it" while doing the scan. We hoped this was because it was perhaps her first day on the job (more wishful thinking).  But no, the radiologist did not love the sight of it either so the ultrasound lead to a CT scan which lead to an ENT visit with Dr. Jethwa which lead to an oropharyngeal (throat/tonsil area) squamous cell cancer (HPV+) diagnosis in late June. The HPV virus, which 70% of people have, actually caused his cancer. The sneaky, creepy little virus actually altered his cell's DNA - rude! But this is actually a good thing as this type of cancer is very treatable and usually does not spread. For a few weeks we were worried that the cancer had spread to his lungs as two lymph nodes at the base of his lungs and one nodule in the lungs lit up on the PET scan. The biopsy of the lymph nodes came back as negative for cancer, which was the best news. When they then tried to biopsy the nodule on his lung, they could not get a sample because the nodule "was as hard as a marble." The miniscule scraping they got from the nodule was negative for cancer but it was not enough of a sample to fully rule out cancer. Sam's doctors believe the nodule to be benign since it was so hard (they can usually biopsy cancer) but they will keep an eye on it in upcoming scans. As such, such his current diagnosis is Stage 1, which boasts a very high rate of cure. 

To get to that cure, however, Sam has to undergo both chemotherapy (Carboplatin) once a week for six weeks and radiation everyday for 6.5 weeks (33 treatments). Because the treatment targets the mouth (or as Eliza likes to say "BLASTS IT"), it can be grueling and painful, especially after the first two weeks.  He is being treated at the University of Minnesota's Cancer Center (Dr. Naomi Fujioka, medical oncologist, and Dr. Chris Wilke, radiation oncologist)- a place near and dear to our hearts as Lisa, my mom, and many of her closest friends worked in oncology there for decades.  In addition, I actually worked summers at the U's radiation therapy center front desk and some of my former work pals are still there - 20+ years later. 

 While a cancer diagnosis is never good news, we and our extended families feel incredibly grateful for the hopeful prognosis.  We are also so thankful for the unyielding love and support we have received. On our darkest days over these past two months, there was always light because of you.  Please keep the prayers, positive thoughts, vibes, etc. coming as each one of them boosts us up and holds us tight. We feel so deeply and widely loved. 

Since Sam's main focus for the fall will be getting through treatment and healing, my sister-in-law Becca Hurt has set up a Meal Train (https://mealtrain.com/zok0qo) . If you'd like to help out in some other way, please contact Becca (beccahurt7@gmail.com) and she will put you on the list.  

Thank you for reading and keeping tabs on Sam's cancer journey. As far as journeys go, we'd much rather have him on one that involves a tent, canoe, and deep, blue lakes filled with walleye, but this is a journey that we must and will take. And we will take it together. Thanks for coming along.

With love,
Nicole 

Newest Update

Journal entry by Nicole Hurt

Sam had his PET scan on January 2nd and received the results last week when he met with his oncologist. His oncologist happily reported that nothing lit up in his lungs!!!! The nodule that they had been watching has even gotten a bit smaller, which she says is a very good sign. She said if she was not worried about it before, she is "infinitely less worried" after this scan, which to me sounds like a good reason to cross it off the worry list (do not recommend having one of these but old habits die hard). She also informed us that the original tumor in Sam's throat appears to be dead. So the cells that started all this have bit the dust, which is simply amazing. However, a very small part (microscopic sliver) of that big lymph node (the lump) that tipped us off to the cancer last year is still lighting up on the scan. Best case scenario, she said, is that the node is still healing. She ordered a repeat scan in 3 months to check up on  it. We felt cautiously optimistic after that meeting. 

Then Sam and my mom met his ENT on Monday afternoon. His ENT informed them that with Sam's cancer, involved lymph nodes, especially when they become cystic like his did, heal very slowly. In fact, he's not at all surprised to see that it lit up on the scan. He is encouraged by the fact that the node still is shrinking (based on Sam's December CT scan) and the shrinking (healing) is very likely the reason it lit up. We can't know for sure, of course, as nothing in cancer-land ever seems to be, but we have good reason to believe that he will get the "all-clear: YOU ARE CANCER FREE" in three months. We celebrated that meeting with our moms and dear friends watching Sam's beloved Dawgs win another National Championship without hesitation. 

Sam is fully back to work and our days have inched closer and closer to "normal" over the past few weeks. He is able to eat so much more and has even been able to drink a beer on occasion. If you have ever fancied yourself a beer-snob (like I did years ago), it would pain you to know the beer that goes down best so I will leave that out. Just know that he is inching closer to normal and "good" brewskis are in his future! On one of Sam's pain-filled days of recovery, he walked by a bowl of chips and said "I cannot wait for the day when I can mindlessly pick one of these up and eat it." A few weeks ago, he did just that! Because of a growing ease with eating and drinking, Sam is also slowly putting back on some weight. This weekend he is doing one of his favorite things in the world - fishing - with my brothers, soon-to-be-brother-in-law, and dad.  As my brother said, our collective experience with Sam's diagnosis, treatment, and recovery has made this year's trip more "epic and grateful." 

We've been having a breathtakingly beautiful (and backbreaking if you are of the shoveling kind) winter up here in the Northland. We drive around in wonder of the beauty of this world trying to snap pictures of the scene. Sending a pinch of that winter wonder (not the temps, we promise) and endless love your way as we all make our way into 2023.

You'll hear from me in three months.

Love,

Nicole

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