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Jun 09-15

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Happy Brain Cancer Awareness Month (even if today is the last day)! May is an extra special month because in May of 2022 I finished radiation and in May of 2023 I finished chemo! I can't believe I've been done with treatment for a year! 

I also want to give an update as to how my care is going. I am now officially a patient at John's Hopkins! Riley and I flew out to Baltimore for my first appointment back in April, and I was blown away. My doctor (both a MD and a PhD) is a specialist in the gliomas and has ties to many of the clinical trials. She is very knowledgeable and personable, and it was super reassuring to hear that the treatment that I received in Iowa was the highest standard of treatment today. Last time I had given an update, I mentioned how difficult it was to get a MRI here in Albuquerque and the nightmare it has been to get my records to other institutions. With this in mind, I was super nervous because I was due for my quarterly MRI but had no one to put in the order for it. My doctor pulled some strings and was able to sneak me into a research MRI less than a day after our initial appointment so we could get it taken care of before going home! All I had to do was sit in the machine a little longer and the research group gave me $50! I had my results in a few days - no change! 

For now, no news is good news! 

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