Rylee has been doing super well taking her medicines now! She has some side effects (not sure if it’s the steroid or blood pressure medicine) and gets tired and headaches very quickly after being active so she’s learning to take it easy. Now she is in school and has to get up at 5:00 every morning and on the bus at 6:10! It makes for a long day and she’s definitely exhausted but we’re taking it day by day. She is done taking her steroids on Sunday 9/27 and we go back to the doctor on October 8th to re check her labs and blood pressure. Praying that everything looks good at the appointment and that the steroids weren’t acting as a bandaid for her body. Will update when we know more!

Thank you all again SOOOOO much for all your kind well wishes, prayers and donations. It has made a huge difference for Josh and I being able to focus on Rylee’s needs and keeping positive, We love you all!