Ruth’s Story

Site created on January 12, 2023

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Newest Update

Journal entry by Ruth McMullin

Wow, I don't even know where to start. I finished my first full round of chemo (4 cycles) back in early March. The follow up MRI showed some shrinkage, but it wasn't gone. Over the course of the rest of March and early April I did two more rounds of high dose chemo. Overlapping those visits has been a battery of tests to get me cleared for a clinical trial.  The clinical trial incorporates CAR-T cell therapy to the C19 and C20 protein receptors. What is that? My question too. The team will harvest my T-cells and send them to a lab to be weaponized genetically. The cells will then be returned to my body and trained to only hunt and destroy cells that put out these two particular cancer proteins. My tumor hasn't fully responded to chemo, so this is the best chance I have. The plan was to have another follow up brain MRI on May 13th and cell collection on May 15th. On May 1st I had a spinal tap and a lumbar puncture as part of the clinical trial prep. They were done back to back with light sedation, specifically versed and fentanyl. After the procedure I was super sick. Very very sleepy, horribly nauseated and extremely dizzy. I thought it was a bad reaction to the versed (which may have happened once before year ago, but I couldn't remember.) One day turned into the whole weekend and the into the next week. I just could not shake the dizziness or the urge to vomit. I couldn't eat, and lost 10 pounds. 
 On May 2nd, the clinical nurse called to say she found an opening for a brain MRI on May 3rd first thing the morning if I could make it. I told her I could. I was still feeling too dizzy to drive so I took an Uber to the appointment. Vaughn wanted to drive me, but we had contractors coming to the house. My MRI was done at about 11 am. At about 3:30 pm, I received a call from my team. I turns out the sick feeling was not from the anesthesia. The MRI showed the tumor has grown and was now putting pressure down my spine, which could stop my air supply. I was told to get to the hospital immediately. By 5 pm I was getting my bracelet and headed to my room. My 6 pm I was on steroids. Everything happened so fast. I hardly got a chance to kiss my family good bye. I've been on steroids over night and FINALLY feel better! I am back in for a few days to continue the steroids and also start Radiation. I've never had radiation, so this is also something new for me. I'm told I may get to go home after a few days. That's good because I still need to go vote. Don't forget early voting has started for most of GA. Gwinnett folks, you can early vote 7 says a week, any precinct. Don't LET ME find out you didn't vote in these primary streets. 


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