Ruth’s Story

Site created on April 29, 2018


This is a website to be able to update everyone in one place. I had a very hard pregnancy! At 35 weeks pregnant I went in for a profile ultrasound to check on Ruth and things did not look good. She slowed down on growing (the whole pregnancy she was measuring very small) and there was only one very small pocket of fluid left right in front of her face.... the rest of my fluid disappeared! Her movements seriously decreased and it was getting to the point it was obviously doing more harm then good keeping her in at that point. The ultrasound tech talked with the doctor and the doctor told her to send me to the hospital right away. They didn't say what the outcome would be so I was extremely nervous.... Is she going to be okay? Is she going to come out alive? 
As I'm driving to Anna Jaques hospital I was crying the whole time as I had bad anxiety before the pregnancy and all this is going on and not knowing if she will be okay and my hormones just collided. So, I got to the hospital and they hooked me up instantly and within 5 minutes the doctor came in and said she is coming tonight via emergency C-section. At this point I was scared and excited that she will finally be here.  Got to be about 9pm and they wheeled me to the ER.  The doctor said " Its baby time!" I have never prayed so hard in the life!!! I was soooo scared! Finally I got to see her. When she first came out she was silent. They brought her to the warmer thing and cleaned her and cleared her lungs and FINALLY she screamed! Her lungs sounded very wet. 
Ruth Francis Hamel was born April 12.2018. Weighed 5 lbs 4.2 oz. 


Again, this is a site to update all friends and family about her medical conditions and how she is doing!

Newest Update

Journal entry by Patricia Brady

Hello friends and family,
    Yesterday I went and talked with the heart doctor Roger Brightbart at Boston Children's Hospital. Ruth will be most likely having open heart surgery tomorrow, Friday June 29th, 2018. The surgery will take 5-8 hours. They have to close 3 shunts (holes) in her heart. She will be on a ventalator while in operating room. With the 3 holes in Ruth's heart the doctor told me that there is red and blue blood that is in the heart. With the holes she has the red and blue blood are mixing. We will be getting updates every 90 minutes. I also found out because of her conditions she has pulmonary hypertension. 

The three holes that are in Ruth's heart are called PDA, ASD, and VSD.

PDA- Patent Ductus Ateriosus
What is it?
Before a baby is born, the fetus's blood does not need to go to the lungs to get oxygenated. The ductus arteriosus is a hole that allows the blood to skip the circulation to the lungs. However, when the baby is born, the blood must receive oxygen in the lungs and this hole is supposed to close. If the ductus arteriosus is still open (or patent) the blood may skip this necessary step of circulation. The open hole is called the patent ductus arteriosus. 
What causes it?
The ductus arteriosus is a normal fetal artery connecting the main body artery (aorta) and the main lung artery (pulmonary artery). The ductus allows blood to detour away from the lungs before birth.
Every baby is born with a ductus arteriosus. After birth, the opening is no longer needed and it usually narrows and closes within the first few days.
Sometimes, the ductus doesn't close after birth. Failure of the ductus to close is common in premature infants but rare in full-term babies. In most children, the cause of PDA isn't known. Some children can have other heart defects along with the PDA.
How does it affect the heart?
Normally the heart's left side only pumps blood to the body, and the right side only pumps blood to the lungs. In a child with PDA, extra blood gets pumped from the body artery ( aorta) into the lung(pulmonary) arteries. If the PDA is large, the extra blood being pumped into the lung arteries makes the heart and lungs work harder and the lungs can become congested.



ASD- Atrial Septal Defect
What is it?
A "hole" in the wall that separates the top two chambers of the heart.
This defect allows oxygen-rich blood to leak into the oxygen-poor blood chambers in the heart. ASD is a defect in the septum between the heart's two upper chamber's (atria). The septum is a wall that separates the heart's left and right sides.
What causes it?
Every child is born with an opening between the upper heart chamber's. It's a normal fetal opening that allows blood to detour away from the lungs before birth. After birth, the opening is no longer needed and usually closes or becomes very small within several weeks or months.
Sometimes the opening is larger than normal and doesn't close after birth. In most children the cause isn't known. Some children can have other heart defect's along with ASD.
How does it affect the heart?
Normally, the left side of the heart only pumps blood to the body, and the right side of the heart only pumps blood to the lungs. In a child with ASD, blood can travel across the hole from the left upper heart chamber (left atrium) to the right upper chamber (right atrium) and out into the lung arteries.
If the ASD is large, the extra blood being pumped into the lungs work harder and the lung arteries can become gradually damaged. 

VSD- Ventricular Septal Defect
What is it?
VSD is a hole in the wall separating the two lower chamber's of the heart.
In normal development, the wall between the chamber's closes before the fetus is born, so that by birth, oxygen-rich blood is kept from mixing with the oxygen-poor blood. When the hole does not close, it may cause higher pressure in the heart or reduced oxygen to the body.
What causes it?
In most children, the cause isn't known. It's a very common type of heart defect. Some children can have other heart defects along with VSD.
How does it affect the heart?
Normally, the left side of the heart only pumps blood to the body, and the heart's right side only pumps blood to the lungs. In a child with VSD, blood can travel across the hole from the left pumping chamber (left ventricle) to the right pumping chamber (right ventricle) and out into the lung arteries. If the VSD is large, the extra blood being pumped into the lung arteries makes the heart and lungs work harder and the lungs can become congested. 

Pulmonary Hypertension- is high blood pressure in the arteries to the lungs.

red blood- oxygen-rich

blue blood- oxygen-poor
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