Russell’s Story

Site created on October 9, 2022


In July 2001 I donated my left kidney to my sister, who suffered from a kidney disease which had progressed to kidney failure.  Testing at UMass Memorial Hospital showed a perfect match between us and after careful evaluation of my kidney I was given a clean bill of health to donate.  In 2006, during a routine physical my primary care doctor showed me "mouse ears" on red blood cells in my urine under a microscope. I was diagnosed with  glomerulonephritis, the same disease group my sister had.  However, my kidney disease may be related to a hiking incident in 2004 when I suffered from frostbite and hypothermia which triggered an acute kidney injury.
So here I am in 2022 on the waiting list for a donor kidney. My sister, now 21 years with my donated kidney, is doing great! I'm under the care of the wonderful Nephrology and Kidney Transplant teams at the Brigham and Women's hospital in Boston, home to the first kidney transplant in the country.
My wife and two boys,  7 and 10, are my amazing support team and my love for them is unending. They keep me grounded, accept no griping, and motivate me tp accept the things I cannot change and change the things I cannot accept.

Newest Update

Journal entry by Russell Cox

Starting to feel a bit more human today (Sat).  Discharged Tues. one day after surgery, a bit early but I'd rather suffer at home and watching  the old growth trees being ripped out by machinery behind the Faulkner Hospital (expansion coming!) was a bit too close to home as I recovered from an organ being ripped out by machinery.

Luckily I'm in the care of a highly qualified Nurse Practitioner who glances at my incisions with a quick "looks great!" while I grimace and quickly turn away from the mirror while hunched over the sink when I have the energy to stand.

Test results on the removed kidney came back today with no surprises; Clear Cell Renal Cell Carcinoma contained to the kidney. So little chance of recurrence, 6 mos screening (MRIs), hopefully no more surprises down the road.

It's a long road to recovery, but we are getting by. Meals are being served, boys are reluctantly helping out with some chores, basics are cared for as Margaret bears the load for a few more weeks.

Optimistically the summer is booked full of camping trips,  kayaking with the scouts, and a trip to Iceland at the end. Now if I could just get out of bed and stand up straight!

 

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