Rosalie’s Story

Site created on May 26, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.


Rosalie was born on Tuesday, May 22 at 11:17 pm at Meriter Hospital.  She weighed 7 lbs 2 oz and was 18 3/4 inches long. She has a good set of lungs as we could hear her crying when her daddy called us shortly after midnight to announce her birth.  He wouldn't tell us her name or sex until we came to meet her but he said both her and her mommy Marie were doing well. 


On Wednesday, Rosalie Marie was introduced to the extended family.  Her visitors included all four of her grandparents: Don & Mary  and Jake & Lucy  and her two cousins Lily (age 2) and Ella (age 5 1/2 weeks).  She also met her Aunts Kelly and Karen and her Uncle Nathan.  She couldn't meet Aunt Hannah yet because she was in LaCrosse for school.  She slept a lot and ate a little.  She also had her hearing test and her first bath.  She sure did not like being unwrapped and once again demonstrated her strong set of lungs.  Everything seemed perfect except that one of the two pediatricians who checked her over heard a little heart murmur.  She was not too concerned as she said that is fairly normal in newborns.  They would check her again on Thursday before she went home and if there was still a murmur, they would do an echo cardiogram just to be sure everything was alright.  


On Thursday, Marie worked with the nurses to try and get Rosalie to nurse a little more.  The pediatricians did still hear the murmur so as a precaution, they ordered the echo.  In mid afternoon, they came into the room to do the echo and about a half an hour into the echo, the technician got kind of excited and started requesting a cardiologist STAT.  As Ethan says, she didn't have the best bed side manner!  The cardiologist arrived and determined that Rosalie should go the the neo natal intensive care unit (NICU) and she was quickly whisked away.

Newest Update

Journal entry by Mary Greuel

February is American Heart Month, and  Congenital Heart Disease (CHD) Awareness Week started yesterday and goes through Valentines Day.  What better time to give a Rosalie update and let everyone know that she continues to do great!  She is now 8 1/2 months old and with the exception of her scar, her biweekly physical therapy, and a medical study she participates in; you would never know the first two months of her life were any different from any normal infant. 

She's doing well at physical therapy.  However, she does seems a little shy to show off her ability to roll over and move so she will continue to go visit the therapist until she convinces them that she is reaching all the age appropriate milestones.  It seems to all of us that she is simply content doing whatever she is doing and therefore just doesn't have any desire to change position or move around to do something else.  Once again, she demonstrates that she definitely has a mind of her own!  Anyway, although there don't appear to be any real concerns about her abilities, it doesn't hurt to have a trained therapist work with her and let her play on the cool mats.  Maybe it will be the beginning of a gymnastics career.  Well that's unless her "Shrimp Dip" class makes her a swimmer instead.  Yes, she's even able to go to swimming class and as you can see, she certainly seems to enjoy that.

Time for a little plug.  All of you who have followed this Caring Bridge know about Rosalie's Beads of Courage and how much they meant to her daddy and mommy during her hospital stay.  They provide a marker for everything she went through and someday mommy and daddy will be able to  share with Rosalie the symbols of her milestones during her treatment.  If you are interested, the story of the beads can be found on this UW Health page:
https://parenting.uwhealth.org/2018/09/beads-of-courage-inspires-many-families/

As noted in that article, the annual fundraiser for the bead program at the Children's Hospital in Madison is coming up on February 16.  So if you're looking for a new place to eat next Saturday, 20% of the restaurant sales at the Varsity Bar and Grill in Sun Prairie will go to the Beads of Courage program at Children's.  They'll also have auctions and other things going on.  There's more info here: Asher's Heart Fundraiser

Every day we still all feel grateful and blessed that Rosalie is doing so well and her day brightening smile always adds joy to our day.  Hopefully, she can brighten your day too with today's pictures.
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