Rome’s Story

Site created on February 2, 2022

Welcome to Rome's leukemia battle. We are using this site to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for your love and for your visit. 

Rome Elijah Libka was diagnosed with JMML on Friday January 28th 2022. This is an impossibly rare disease affecting roughly 1 in 1,000,000 children. There is hope, and at the moment we are in the capable and caring hands of St. Louis Children's hospital and the Washington University physicians. 

***There are two places to donate for Rome. The "Tribute" section will donate to the caring bridge organization/website (this Will not go to us). The "Ways to help" section will bring help directly to the family through the gofundme or through individual requests for help we put up. If you made a tribute to Caringbridge, but meant to donate to the family, please call Caringbridge at 651-452-7940 and they will refund your donation. ***

In the "ways to help" section there is a link to Be the Match. This is a website where you can send off for a genetic swab to be entered into the national bone marrow transplant database. Even if your not a match for Rome ... there may be another family out there in need of a giving person. If we as a community can help one child battling this terrible disease it will be worth it. We encourage you to explore their site and consider signing up to be a match. We know we serve a God of miracles, and we are praying for Him to deliver one here. 

Newest Update

Journal entry by Cory Libka

What is the significance of 100 days? 


It is 27.39% of a year, it’s 8 days shy of how long a lion takes to be born, if you lived on Mercury you would already by 14% through a second year. Most seasons will have come and gone in 100 days and at normal electricity demand ~2.6 billion gallons of water will have passed through the Hoover dam. It’s 2,400 hours, 144,000 minutes, and 8,640,000 seconds. 


For us, it is a monumentally important milestone where our miracle of a son proved that through grit, strength, love, stamina, and god we can achieve great things. In the face of seemingly insurmountable odds and with the absolute love and dedication of those around him Rome has worked through more pain and challenge in 1 year than most people will in an entire lifetime. 


How thankful we are for these 100 days. For every smile, every smooch, and every snuggle. He is a miracle of a boy, one we are so blessed to have been entrusted to care for. Great work my son, I can’t wait to see what you can accomplish. 


A special thanks to my wife who has borne the brunt of our family’s support. You likely wouldn’t believe me if I catalogued all of the things she has sacrificed and experienced in the last year, but please trust me when I say this … she is the epitome of grace, elegance, and strength … even when all seems lost, she gets us through. I’m honored to be your husband. 

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