Robert’s Story

Site created on May 16, 2017

On Monday, May 8, 2017, Mac was diagnosed with lymphoma. He had been to the doctor twice for an upper respiratory/sinus infection. After 4 weeks, two courses of different antibiotics, not liking the lack of improvement and the swollen lymph nodes, his doctor referred him to a general surgeon. After meeting with the surgeon, blood work and CT scans of his cervical neck and chest were ordered. Based on those results the surgeon felt we were dealing with a lymphoma.

 On Tuesday, the 9th, Mac underwent a lymph node biopsy that confirmed the diagnosis of mantel cell lymphoma with a blastic/blastoid variant. According to the little we have read online (we had to stop after a while) this variant is very rare, and very aggressive.



On Wednesday, the 17th, we returned to the surgeon for an incision check. All is good there. This surgeon has had lymphoma, although we are not certain of the type. However, this allows him to be familiar with the process and empathetic with our feeling of immediacy in wanting things to move along quickly. His office expedited our next step to the cancer center.




 On Friday, the 19th, we have an appointment at West Michigan Cancer Center. We hope to learn much more, although it is an initial step in the process of treatment.

Newest Update

Journal entry by Liz McFletcher

Well, here we are. Mac had his final Rituxin immunotherapy infusion on the 11th. With the Cancer Center splitting up between hospitals, his final infusion was at the Bronson Cancer Center. No friendly faces :( 

Mac's numbers are good, and unless and until he becomes symptomatic or those numbers change, he is done with treatment. They will continue to flush his port every 6 weeks, and run his numbers every 60 days. At some point they will remove the port. 

Mac is the only patient they've had with mantle cell lymphoma and his particular variant. The protocol he was under was developed overseas, and no one can say for sure if the three years of Rituxin made a difference. There aren't enough cases to compare to. 

We will continue to live carefully and prayerfully and most of all, gratefully. For continued good health and good friends.

May 8th is the 4 year anniversary of diagnosis. We've come a long way!!

Thank you again, to all of you, for being there for us.

Love, Liz & Mac
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