Robert’s Story

Site created on November 29, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated about Dad in one place. We appreciate your support and words of hope and encouragement. -The Lincicum Boys
Here is a little background: 
In the fall of 2016, Bob was diagnosed with Alzheimer's by the Monroe Clinic Memory Center. Leading up to the diagnosis, the family noticed that he would often be confused by who he was talking to, forgot many details of things that had recently happened and his ability to keep up with regular tasks had changed.  At the time of diagnosis, Bob was able to function with most of his usual independence for routine tasks. It was when he had to do something that wasn't part of his usual routine or something required him to pull up information and make a decision when he needed support.
It has been a slow progression of the disease over the last four years. As he continued to struggle with new tasks and making new memories, he began to lose the ability to be independent and live his life as he used to. We still saw the friendly, chatty, busy Bob but we knew he wasn't able to channel that energy or remember what he wanted to accomplish.
The progression of the disease was slowed somewhat by medication from the beginning but there is no cure for Alzheimer's. Throughout this time, the family has worked with Bob's team at the Monroe Clinic Memory Center. The team included his doctor, a social worker and the clinic's team of nurses. The family was also part of the team and trusted the care the Memory Center provided.
During this time, Bob and Jeannette moved out of their home to downsize into a condo in Freeport. The smaller home came with no need for Bob to do lawn care or shoveling. Shortly after they moved, Bob began to attend a Day Care program at St. Joseph's and even rode the bus three days a week to get there. He really enjoyed day care. It provided an outlet for his friendliness and he participated in all of the activities willingly. In the spring, when COVID-19 shut everything down, we could tell that Bob missed the opportunity to go to daycare. Once it opened back up, he started attending again but it recently had to close because of the county's COVID rates. 
This fall, Jeannette began to share how Bob's condition seemed to be deteriorating faster. She spoke of needing more support for his care and at the October family appointment at the Memory Center, the team discussed the eventual need for long term care. At that time, the team decided to begin in-home care to support Bob and also Jeannette. This support began around the end of October.
Tragically, Jeannette died suddenly. Bob was with her when she passed but unable to get help. When help arrived on November 28th, Bob was found to be in a state of dehydration with bruising on his back like he may have fallen. He was taken to the hospital to fully asses his health and begin fluids. He was in the hospital for treatment Saturday through Tuesday and on Tuesday he was moved into Long Term Memory Care at St. Joseph's facility in Freeport.
That's where this site picks up. As we have been making arrangements for Mom's services, COVID-19 has thrown up some challenges in connecting with friends and family as well as connecting everyone to Dad. We are hoping to make periodic updates to this site to keep everyone up to date on how he is doing.
Thank you for visiting.

Newest Update

Journal entry by Faith Lincicum

First off, we are sorry it took so long to give an update. After Mom's service, everyone has been working on getting things settled for Dad and there just wasn't too much time to sit and type it all up. Thank you for all of the kind words and wishes you have been posting! Without further ado...

Dad has been moved to Azura Memory Care in Monroe. While we were confident in the care he was receiving at St. Joe's, it wasn't meeting his memory care needs. We discovered that in Illinois, facilities often do not carry the specific licenses to care for patients with Alzheimer's throughout the different stages in care. In Wisconsin, facilities do not need separate licenses so we are able to get care without having to move Dad when his Alzheimer's continues to progress.  At Azura, Bob has his own room and then the rest of the "house" looks like a person's home - living room with comfy furniture, a kitchen and dining area. He shared the "house" with about 8 other residents and each person has their own room.

Kevin had a window visit with him on Saturday and he looked good! He was all smiles and carried on a 15 minute conversation with Kevin. For the first part of the conversation, he thought Kevin was one of Dad's brothers but Kevin was able to talk to him about how his days have been going and he even said that he likes it at his new home. The residents are able to have visits from their pets so there was a dog checking everyone out and making the residents smile there on Saturday as well.

The staff member Kevin talked to said that Bob is following the daily routine and participating in all of the activities. He gets himself up and showers himself every couple days and he is even giving himself a shave every so often.  This was good to hear because these were self-care skills that he had stopped doing last summer at home. She did mentioned that he's a little hard to get up in the mornings. We suppose that after so many years getting up early for work, he's earned the right to sleep in a bit. We are taking this as a good sign that he is sleeping well, too.

He stills shows no sign of understanding or remembering what happened with Mom. On the couple occasions he has mentioned her, he says that she has "gone in to town and will be back soon". We don't press the issue as he seems content with this reason that she is not nearby and he seems content with the fact that he is at "home". When he shares a conversation with people, he is able to speak to the way is life was 30-40 years ago or just yesterday. He's not able to share specific events but he does remember meals and other parts of his day.

If anyone is interested in visiting him, calling on the phone or doing a window visit are the easiest ways. You can call 608-329-6336 and ask Bob Lincicum in the "Bottom House". They will get someone to get him to the phone. He is usually able to carry on a 5-10 minute conversation. If you are interested in having a window visit, call that same number and let them know what day and time you would like to come. They are only able to host one window visit at a time so you may need to adjust the time you are stopping if they are already busy. When you call to schedule the visit, they will give you directions for the actual visit.

Saturday was a good day. He had the color in his cheeks and warmth in his smile. We know, with Alzhiemer's, we expect good days and not so good days. It was a blessing to have a good few minutes with him.

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