Faye’s Story

Site created on November 14, 2022

I am a child of God, and someone who loves Jesus with her whole heart!
I am a wife to the love of my life, the one who saved me from myself, and is always there to catch me when I fall.
I am a mama to 2 of the sweetest boys who are 13 and 11.
I am a sister, an aunt, a sister in law, a daughter, a cousin, and a friend.

I am also diagnosed with a terminal disease called Amyloidosis, which I inherited from my dad who passed away in 2010. I say all those other things that define me first because that is how I want to be remembered.

Currently I have Amyloidosis in my heart, stomach, and nerves. As of right now there is no cure, (earthy cure that is) there is treatment that can slow down the progression. I am currently on medicine to try and do that, but the disease seems to have it’s own mind.

So what is Amyloidosis? My non medical way of explaining it is this: all of our livers produce a protein, my misfolds and turns into a glue like substance that then travels all throughout my body and settles, and when it settles it is like glue and then causes the nerves, organs and such to stop working, or working that much harder because of the glue.

God and I have many conversations on how I would like this disease to go, but we all know He has His own plans, and they are way better then mine in the long run.

Thanks for walking with me on this journey, thanks for walking me home……..

Newest Update

The boys are watching…

Journal entry by Faye Adams —

After the Duke visit was my shot and the pain after has been relentless, it just won’t ease up. I woke up Friday just mad. I was mad at life, mad at my body for betraying me, and if I am being honest I was mad at God, that as many prayers are being said that He just sees the plan of Amyloidosis and I. So what is the best thing to do, why stain the big ol murphy bed that Brad made. I told the boys to get their Bible books and I was going to stain and teach at the same time. As soon as I started my hands started to cramp, and said yeah this is going to be a big fat no, but I started and I know with stain I had to finish. So 4 hours later it was finished (well the back piece) but not without a lot of lessons to be had for me and the boys. 

Bradley said that he could help, and I told him that through the stain I was working things out with God because I was mad, he asked why and I told him because my body was betraying me. Wise words from a 14 year old, told me “there is still a lot you can do”. But in that moment I was still so focused on what I could not do. There were lots of tears and crying out to Jesus to help me finish, but we got it done. To get to the bottom part I literally just fell to the ground and crawled around like a crazy lady and just cried as I stained and taught at the same time (benefits of homeschool they see real life happening). I had many friends say that I could have asked them and they would have gladly come and helped out, and I know this but I am stubborn and just needed to do this. 

Saturday we went to a church in Dallas NC for Redemption’s Mercy (the group Brad is in) to sing. It was amazing, it was a small church but the people were so welcoming it was like you were at home for a Sunday night dinner. They did amazing and I am biased but I think it was the best Brad ever sung. The boys were watching, the boys were watching me, watching Brad, to see how we would react. 

What I pray they saw is that it is ok to be mad at God, it is ok to be angry with how life is, but it is not ok to NOT PRAISE Him at the same time. I went and praised God just like I would any other time because I am praising who He is, not where I am at in life. I know that the Bible says that He means good in all things, and that good will come out of this, but some days I am just not wanting to be that tool to be used for it and Friday was that day. People will say how strong that I am, but it is all Him, in me I would quit a million times over. 

They saw their daddy up there, singing praises to God, hands high, worshipping, participating with the praise team during one of their songs, they saw a daddy that is leading his family in the right direction. After the performance we all went out to Cracker Barrel to eat. While there we were able to sing a few songs to the waitress in a filled restaurant and then pray with them when we were leaving. Our boys were watching…..

I may not like where I am, I may fight it, I may get mad at God over it, but when you get down to it, I would walk this road a million times over if it means that our boys get closer to God. That I know when I leave here, I will see them again…that is what keeps me going because I know they are watching always, to see how we react to situations, how Brad and I handle Amyloidosis with God. 

Yesterday was Jacob’s birthday, and I got another year with him, for those that know me know that I am asking, no begging God to allow me to live till they turn 18, that I am able to be here to help usher them into adulthood. We adopted our boys and they have a story that they don’t know all about, and if they want to know it at 18 we will share it with them, and I want to be here to help their hearts process that. It’s funny (which is why I love writing) as I was writing that I felt a tug that God was saying even if I am not He has their hearts with it, He is the author of their story, and can handle it better then I ever could. 

My body is getting tired, I go to MUSC at the end of the next month to see my Amyloidosis cardio dr and will also talk to him about other medications if this pain continues. For now we continue to walk forward, work on what God has me here for, make memories, and keep recruiting people for Heaven 😀

As always thank you for walking me home….because our boys are watching that too….the friends who walk with us, the friends who hold our arms up when we can not, and I pray that if are faced with the same, they would be good walker home people too because we have the best walking with us…………
Read More of the journal titled "The boys are watching…"
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