Randy’s Story

Site created on May 5, 2018


Randy was first diagnosed with cancer last year after exhibiting a series of mysterious symptoms including extreme fatigue, stomach pains, blurry vision, and other aches & pains. These conditions forced him to miss over 3 months of work. When originally diagnosed, the doctors indicated his symptoms primarily came from a dysfunctional thyroid but also discovered cancer. They called it Chronic Leukemia which, while not immediately threatening, needed to be addressed. Since that time, the Leukemia has become far more aggressive than anticipated and they are now faced with heavy treatments of chemo-therapy and a bone marrow transplant. 

To support Randy and his family go to  www.gofundme.com/randybakerfamily , visit the "ways to help" page,  or contact us directly at RandyBakerFamilyFightsCancer@gmail.com 
Please note, there are several spots that say "donate to CaringBridge," these donations support the business that makes the website possible, but none of the proceeds will end up in Randy's account.


A brief summary of the week this whole thing blew up:

On Monday, April 30th, 2018, Randy had an appointment with his local doctor to go over the continuing health problems he had been dealing with the last few weeks. The latest bout caused fatigue, abdominal pain, loss of appetite and a low grade fever. The tests didn't look good. Tuesday, May 1st, Randy and Nancy traveled to Mayo Clinic for follow-up. The prognosis continued to worsen as information was gathered and it was clear they would be in the hospital for a few days. Apparently, the doctor was surprised at Randy's pain tolerance, given his condition. Randy's White Blood Cell (WBC) count was up past 90,000 despite medication (I believe anything above 11,000 is considered high?). The elevated WBC count is negatively affecting the spleen which has enlarged to 11cm.  Randy's shoulder continued giving him a lot of trouble and we were told this is not unusual when the spleen is so enlarged. 


The plan going forward:
1. Randy started Chemo May 5th. The chemo is meant to kill all white blood cells. After the white blood cells are gone they will need to re-populate. There is a significant risk for infection during this time (97% typical infection rate?) At the end of this chemo treatment we pray that the cancer will be in remission so that they can progress to a bone marrow transplant. The process of chemo, recovery, and testing is projected to take 4-5 weeks during which time he will stay in Mayo. If the cancer has not gone into remission, they plan to do additional rounds of chemo-therapy as the cancer must be in remission before a transplant can proceed. 


2.  With a Bone Marrow Transplant approaching possibly as soon as  June or July, it is important to find an eligible donor quickly. The search starts with his siblings but will broaden in scope if no match is found.  Once the cancer is in remission, a bone marrow transplant can take place. The transplant and recovery process is typically something like 4-6 months. From what I understand, the doctors see a transplant as being the best and only (medical) option for a cure. 


Even if things go well it appears that one form of hospitalization or another is likely to extend many months.


This has been a shock to all of us. We knew his condition was bad but the seriousness of treatments has taken a big jump we didn't expect. We are praying for healing while sorting out what can be done to aid Randy & Nancy. Please also pray for the kids still at home as their lives are directly disrupted by all this (Ruthanna, Ethan, Tirzah, & Jubilee). 


We are extremely grateful for so many things to this point. The support from Lynette (Nancy's sister) has been tremendous; she has been driving Randy & Nancy back and forth and staying with Nancy for a number of trips to Rochester. Some of our favorite friends ever (is that bad to say?), live in Rochester, and have graciously hosted Randy & Nancy for numerous trips leading up to this time and have continued to provide a place of rest for Nancy. The Mayo Clinic has been great and we have heard that Randy has the best possible doctor for this situation. In addition, God has been providing surprise gifts of provision in a number of other unexpected ways.

Newest Update

Journal entry by Nancy Baker

When birthdays roll around at our house (as they often do, with the number in our family), we sing two birthday songs. First, the traditional “Happy Birthday to You,” followed by a short chorus:

“May the Blessing of the Lord be upon you!
We bless you in the Name of the Lord!
May the Blessing of the Lord be upon you!
We bless you in the Name of the Lord!”

Which I just sang to Randy… as… today, we celebrate his FIFTH “birthday”! Five years ago today, since his bone marrow transplant! Of course, our journey at Mayo Clinic began several months prior to that life-saving procedure, and our required stay in Rochester was extended four months beyond his transplant, with many trips back and forth since then.

Randy’s doctors do continue to monitor his progress carefully. Currently, he is expected to have lab work done once a month, with those results being sent to Mayo, where his transplant doctor reviews them. We thank God that, most often, his results are stable. Randy is still on a host of medications. Because his skin is among the areas that they watch carefully for graft vs. host problems after bone marrow transplants, he has frequent visits with a dermatologist.

Although Randy had a short bout of pneumonia at the end of May (and was then given the choice as to be admitted to our local hospital or not), he recuperated well at home, and has had no hospitalizations since the end of July last year. Virtual visits with Mayo, right from home, have been an ongoing blessing; we haven’t actually been to Mayo for about nine months. He is, however, scheduled for a number of in-person appointments at Mayo at the end of this month, including ones with graft-vs-host eye specialists and a skin specialist, in addition to his regular checkups. Just to be sure all is well.

Once again, I am reminded of the “random” guy in an elevator at Mayo “way back when” (before Randy’s transplant), who- after we had just received discouraging news that Randy’s numbers had gone the wrong way again after his first chemo treatments, suddenly said in a strong voice:
“All is well in Jesus’ Name!” (After which we accidentally got off the elevator on the wrong floor and never saw him again )

Not surprisingly, but oh-so thankfully… if you were to ask Randy (as I did), for an assessment of his condition, it would be short and sweet:

In Randy’s words: “I thank God for how well I’ve been doing. I’m doing great!”

Happy birthday to you, Randy! How thankful we are for the past five years, and each of your days!

___________________________________________________________________________________________________

“This is a holy moment.”

The words that the pastor spoke that day, as my sister went from this life to the next, ring just as clearly in my mind now as they did in that breathless moment, now over twenty-one years ago. As Judy took her last breath, each of those by her side likely had to catch their own; I still do, as I reflect on that moment.

“This is a holy moment now.”   -So also go the words of a Matt Redman song.
Followed by:
“Something of Heaven touches Earth.
Voices of angels all resound-
we join their song!”

Something of Heaven touching Earth.
Indeed something… (or Someone!) touched the earth then; yes, even the earth that once housed Judy, as God took her spirit to be with Him in Heaven!

Five years ago today, as Randy lay on a bed at Mayo Clinic, Heaven also touched Earth. And somehow this, too, was a “holy moment.” Not that Randy went from death to life in the literal sense. Yet, through the bone marrow transplant that Randy received that day, God brought final death to a disease and graciously extended his life.

Though Randy’s brother was his willing stem cell donor, and though the hands of the doctors and nurses carried out the amazing procedure, God’s loving hand provided, moving through and guiding it all. He is the God who heals!

In the words of what was once one of my dad’s favorite hymns (And I imagine he may be singing yet before Jesus Himself now!) ...

Great is Thy faithfulness!
Great is Thy faithfulness!
Morning by morning new mercies I see;
all I have needed Thy hand hath provided:
great is Thy faithfulness, Lord, unto me!


Not all has been smooth sailing since Randy’s transplant. There have been a number of trials and what sometimes seemed like setbacks along the way, that doctors have chalked up as graft vs. host disease. Yet, without hesitation, we can truly testify, that in each and every season…

Summer and winter, and springtime and harvest;
sun, moon, and stars in their courses above
join with all nature in manifold witness
to Thy great faithfulness, mercy and love.

For God has given to each of us:

Pardon for sin and a peace that endureth,
Thine own dear Presence to cheer and to guide;
strength for today and bright hope for tomorrow:
blessings all mine, with ten thousand beside!


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