Rachel’s Story

Site created on December 9, 2020


On Sunday, November 29th I was diagnosed with Stage 2 Invasive Ductal Carcinoma Breast Cancer that has spread to my lymph nodes. I have been through every emotion imaginable the past 10 days, but am in a very good strong place right now and am ready to fight this cancer with everything I've got. I have had SO many tests/scans/consultations I can hardly remember everything. Serious information overload. I will be starting a 5 month chemotherapy regiment on Monday, followed by a surgery (not sure what kind yet) and then 6 weeks of radiation. So...if everything stays as planned and no more curve balls are thrown our way we are looking at a 7 month treatment to kill the cancer. I'm not going to go into great detail here, but the only bad news we've received (other than the cancer being there) is that it has spread to the lymph nodes which is why I have to do Chemo. My bone scan came back clean today (praise Jesus) and we are still waiting on the radiologist to read other scans to make sure those are clean as well. If all we are dealing with is breast cancer and some lymph nodes, I consider myself blessed because it is then curable, not just treatable. I also had a day surgery today to put in my chemo port that went very well with little to no discomfort. I have seen God's Grace and God's Timing through all of this. Matt has been my rock, my shoulder to cry on, my punching bag, my medical consultant and the BEST husband I could ask for. His mother passed away two days after my diagnosis. I know she is in Heaven watching down on all of us and I have felt her presence through all of my procedures. My kids are WAY more resilient than I gave them credit for and they are the reason I will fight this with everything I've got. My Mom....well, she's the best Mom a girl could ask for and will be here to take care of me every step of the way. My friends have stepped up BIG TIME. My oncology team is amazing. My employer has been so supportive and I am so Thankful for the team I work with and the company I work for. SO many blessings I can't list them all. The most asked questions is "how did you find it". Well....my story is somewhat unique. I felt a difference in denseness in my breast about 2 months ago. Not a mass, not a lump or bump, just a change. I wasn't going to go get it checked because I figured it was nothing. Matt urged me to go get it checked out (hand of God) and my OBGYN didn't think it was anything either but said I should go get another mammogram and a sonogram (hand of God) just to make sure. Note, I have gotten mammograms every year like clockwork since I was 38. I went in and the mammogram was clean. The sonogram was also clean, but thankfully I had a very observant sonogram tech who went into my arm pit (further than normal, once again hand of God) and she noticed a questionable lymph node. Through all of that ONE lymph node. That then prompted an MRI which is where the tumor finally presented itself. For you ladies wondering, yes I do have dense breast tissue and they don't know if that is what was "hiding" it or not. The tumor is about 6cm so it's not small. PLEASE PLEASE PLEASE do NOT skip you mammograms. My case is unique and most often mammograms will detect these. Also please do self breast exams. If I hadn't noticed the difference myself it could have spread much further and been much more serious.Immediate prayers are needed for the rest of my scans to come back clean, my BRCA genetic test to come back negative and for strength to get through the next 5 months of chemo. They are hitting me with a strong dose because I am young and healthy and can handle it - it's the best chemo out there, just not the easiest to take. My attitude is that if it's the most effective let's hit it hard and get it gone.I know God is with me on this journey and it is His will that will be done. I know there is a reason He chose me to have Cancer, just not sure what that reason is yet. You all know I'm not quiet, so when I kick cancer's booty, AND I WILL, I will be the loudest, strongest advocate for other women going through the same.



202 CommentsLikeCommentShare

Newest Update

Journal entry by Rachel Knippenberg

I hit a HUGE milestone 2 weeks ago today.  Normally I journal these milestones right away, but I haven't up until today.  I was thinking this morning and asking myself why it's taken me so long this time to put my thoughts down on paper.  I have a few answers.  1) I've been extremely busy - life is back to normal and we are going full speed every day.  2) I'm not really sure what to say.  I'm kind of at a loss for words and that is really unusual for me.  3) I subconsciously was waiting until October 1st because today is the start of Breast Cancer Awareness month.  Truthfully, it's probably all 3 of these things mixed together.

2 weeks ago today, September 17th, marked the END of Cancer Treatments.  I got to ring the bell!!!  277 days I was undergoing active cancer treatment and 2 weeks ago was my FINAL radiation treatment marking the official end.  If you saw my Facebook post, you saw the emotion that came out of me when I was ringing the bell.  I'm not one to show emotion easily, so that one took me by surprise.  So much of the past year has been a blur and now looking back at it, it almost seems unreal.  Is it conceited to say that I am SO proud of myself?  Maybe so, but from the day of my diagnosis I dug my heals in, knew I was in for the fight of my life, and I fought with everything I had in me and kicked Cancer's booty.  Heck Ya, I'm proud of myself!!!!

The last leg of my cancer journey was Radiation.  I had to undergo 28 rounds of radiation - every day I went to the hospital, but I am finished.  My skin held up very well, a little redness, but that was about it.  I didn't think it was wearing me out that much, but every day that I am on the other side of radiation I have more and more energy, and feel more like myself!!  The hospital made an exception for my last treatment and let Matt come with me.  This was HUGE.  He hasn't been to any appointments with me thanks to Covid.  Not only did they let him come with me to the appointment, but they let him back in the room when they were setting me up for my treatment and explained everything to him (I learned a few things as well).  Then, when they closed the big scary door that is SO thick that if you think about it, you really don't want to be on the inside of it, they let him watch the actual treatment.  He said it was so cool to be able to see how precise everything is.  I didn't know it, but the machine pretty much acts like a huge x-ray machine.  He got an inside glimpse into what my radiation treatments really looked like.  It was pretty cool and I was SO thankful to have him there with me on my FINAL day!!!

Now that Cancer Treatment is done I can concentrate on getting back to my old self.  I'm kind of like Humpty Dumpty who fell off the wall, and now they have to put me back together again.  I continue to go to Physical Therapy twice/week and will for months.  My range of motion is getting better, but won't be 100% until after the expander is taken out.  My PT, Sruthi, has truly been a gift from God.  Because of her, I am no longer in pain all day every day.  I'm still a little uncomfortable and bothered by the expander, but I can sleep again and don't have to be on pain meds round the clock.  She has given me some semblance of normalcy back.  I still have 2 more surgeries ahead of me for the reconstruction portion.  I have my next appointment with my plastic surgeon on October 27th.  At that appointment we will begin to discuss the when and how of my next surgery.  The absolute earliest it would be is December 17, but more likely it'll be some time in January or February.  This expander can't come out soon enough as far as I'm concerned, but I don't want to rush the process either.  

Now...for my soap box moment.  Ladies - It is October - This is Breast Cancer Awareness month (although every month should be breast cancer awareness month in my opinion).  Please, please, please schedule your annual mammograms, do you self breast exams at home, know your body, don't ignore the signs if you think something is wrong.  I hate to think what would have happened if I ignored it.  Modern Medicine is amazing and early detection is KEY.  If I have inspired you at all, please share my story and encourage those you love to be aware.  1 in 8 women will get breast cancer in their lifetime - that is a HUGE statistic - be your own advocate and take control of your own health PLEASE.  Ok - I'll get off my soap box now.

As I sit here and write this, I am outside on our patio enjoying the almost fall like temps.  When I think back over the past year it's very overwhelming to think what I've all been through, and what my family has been through with me.  I know I fought hard, but they fought hard as well.  The support we have been shown is unbelievable and humbling.  God has a plan for me - this I know!!  I also know that I could not have gotten through this past year without Him by my side every step of the way.  He has shown me so many miracles this year.  I have said it a million times and will continue to say it - God is Good - ALL the time!!

 

 

 

Patients and caregivers love hearing from you; add a comment to show your support.
Help Rachel Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Rachel's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top