Aimee’s Story

Site created on July 14, 2016


UPDATED August 25, 2021
So much has happened since I began sharing my story and here I am 5 years later! This has been WAY more of an adventure than I would ever have imagined. Thank you to all who have embarked on this journey with me. I absolutely could not do this on my own. I feel blessed to share with you and by the gift that each one of you is to me. Thank  you especially for your ongoing prayers and support. They literally carry me and are a testament to the fact that we are all living together and we do better when we unite with one another! God created each one of us for our very own purpose and He needs each one of us to live our lives for Him and for His purpose. I try to pray each day, as Jesus taught us, "Thy will be done". Late in 2015,after 15 years of relapsing and remitting Neurological symptoms, I was finally diagnosed with Myasthenia Gravis, an autoimmune neuromuscular disease. "Myasthenia gravis (MG) can affect any of the muscles that you control voluntarily. It can affect muscles of the face, hands, eyes, arms and legs and those muscles involved in chewing, swallowing and talking. Muscles that control breathing and neck movement also can be affected."(Conquer Myasthenia Gravis, www.myastheniagravis.org)

Newest Update

Journal entry by Aimee Sears

Thanks be to God I only have one more round of Rystiggo on Tuesday and then I get six weeks off 🤞🙏🤞🙏 I'm going to need every bit of "go juice" for the schedule going forward. Our kids are on Fall Break and we already started out going out this morning together. We had a little bit of birthday shopping to do for Dad🤗❤️ While we were out, we decided to pop into Between Friends Coffee as a thank you for their help with the Blizzard Week Awareness campaign. I had to drive for our errands but thankfully the kids took care of loading and unloading Shirley and helping me with all of my gear. I used Giorno a little bit in the car and when we first got to Between Friends. I used my nasal pillows and at least they're less constrictive on my face.  We snapped a family selfie in our green for World Cerebral Palsy Day before Daddy and our girl headed out for another football game tonight. The rest of the weekend will be busy with activities and our guy's birthday celebration. 

Bummer, pics aren't posting again🤷

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