Brian’s Story

Site created on January 30, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

God’s story for our lives is always much better than we could have ever dreamed. He takes twists and turns so that we learn and are drawn closer to him. This is our story....

Sixteen years ago we were about 3 weeks from our first anniversary. Brian had fallen over the weekend and that Monday he was home throwing up. He dehydrated quickly and had to be taken by ambulance to St. Vincent. He was admitted. Things seemed ok but quickly changed. He developed pneumonia and before we knew it he had a central line and was in CCU. After several scary days, he received a blood transfusion and began to get well while there, they discovered he had several auto immune issues that were “dormant” but existent.

Fast forward to November 2018. Brian was hospitalized for a small bowel obstruction. No cause was ever determined. However, his RA flared up; and it was evident this issue had to be addressed. We began the process of getting B an appointment with a local rheumatologist. However the appointment was not scheduled until February 11, 2019.

In mid-January, I noticed that Brian was pale and was huffing and puffing after doing even the simplest tasks. He was exhausted. On January 16th, he saw his primary care physician and diagnosed with severe anemia and a GI bleed. By the Monday, January 21st, we were back at the doctor and being admitted to Baptist Health. It was quickly determined that B needed a blood transfusion, upper GI and colonoscopy. On Tuesday, January 22nd, an echo was done of his heart; and he received a blood transfusion and began the prep for the colonoscopy. Let’s just say that is hard when you aren’t in your own home.

On January 23rd, B had the two procedures. That evening, he was moved to CCU due to concerns over his rising troponin levels. He had 5 ulcers in his stomach and 1 in his colon. One of the ulcers in his stomach had been bleeding.

On Thursday, January 24th, we received the results from the biopsy taken during his tests. Brian has lymphoma. That night, we met with the hematologist who told us that it was Non-Hodgkins Diffused Large B Cell Lymphoma. On Friday, January 25th, we found out that this is more specifically Burkitts. He was also diagnosed with pneumonia. After numerous tests on Saturday including bone marrow biopsy, spinal tap, CT scans and receiving a picc line. The day tanked about 6 pm when B had to be placed on a vent. Chemo started that Saturday night and continued through Tuesday, Jan. 29th.

We are ready to fight!!! We have 3 very good reasons waiting for him at home. ❤️

Newest Update

Journal entry by Rachel Bennett

Grief is a funny thing. It comes in waves. It sneaks up on you catching you completely off guard. It can also knock you over like a huge wave in the Gulf of Mexico. 

I watched as my grandfather grieved my grandmother while she was deteriorating from Alzheimer's. I watched again as he grieved her death in his own way. They were married for 72 years. I remembered adding it up that if Brian and I were to have been married for 72 years we would have to be 97 years old. I wondered if we'd live that long or if I even wanted to live that long. However, that wasn't God's plan for our lives. 17 years and 3 months and 17 days. 

On Wednesday afternoon when the doctor told me that they were basically watching and waiting for Brian to have a heart attack, I suddenly felt completely empty. How could we have prayed so hard and waited for what felt like forever only to find out that it was time to let him go. I knew immediately that I couldn't let him suffer a heart attack regardless of whether or not he could feel it. I wouldn't let that happen. I refused. I made what I believed to be the best decision for the love of my life - not to let him suffer...to let him go into the arms of Jesus. 

For 30 days, I had watched Brian's condition change rapidly and had sat for hours waiting for him to wake up. If he could just wake up....If only I could talk to him one more time. One more kiss. One more hug. To hear his voice one more time. For some reason, that was not what God had planned for us. It was time for Brian to go home and for the girls and I and those who love him to pick up our lives and learn to live with B in their hearts and not in our arms. 

This weekend, my girls and I walked hand-in-hand into a packed Sanctuary. It was filled with friends, co-workers, students with whom B had worked, family, church family, school family, etc. I have never seen so many people gather for a funeral. I honestly believe that Brian had no idea the impact he had made in our little piece of the world for almost 19 years. 

Since Brian moved to Little Rock, we had served at our church. He taught Sunday school, went on mission trips, worked with teenagers, helped with service projects, participated in Bible studies, coached. He had coached in the local softball leagues for all of our girls. He gave his time and his talents and his love. He was our guy. 

Ellie asked me last night if it was normal to not be hungry. Yes, it is normal. At least, it is where I am. 

Our hearts are aching, but I am resting and clinging to the prayer I prayed when Brian got sick. "Lord if this is what you are calling us to and what you have chosen for us then please don't allow it to be for naught. Do BIG things Lord." I believe God is doing BIG things. He is using our story, HIS story, to proclaim HIS name. 

Grief is a funny thing. I pray that in my grief God will be glorified. 

Until we meet again, my precious guy. 

It is Well by Bethel Music......
Grander earth has quaked before
Moved by the sound of His voice
Seas that are shaken and stirred
Can be calmed and broken for my regard
And through it all, through it all
My eyes are on You
And through it all, through it all
It is well
And through it all, through it all
My eyes are on You
And it is well with me
And far be it from me to not believe
Even when my eyes can't see
And this mountain that's in front of me
Will be thrown into the midst of the sea
And through it all, through it all
My eyes are on You
And through it all, through it all
It is well
And through it all, through it all
My eyes are on You
And it is well
It is well
So let go my soul and trust in Him
The waves and wind still know His name
So let go my soul and trust in Him
The waves and wind still know His name
So let go my soul and trust in Him
The waves and wind still know His name
The waves and wind still know His name
And it is well with my soul (sing it everybody)
It is well with my soul
It is well with my soul
It is well 
It is well with my soul
Oh it is well with my soul ('cause of who you are)
Oh it is well with my soul
It is well with my soul
It is well 
It is well with my soul
It is well 
It is well with my soul
It is well 
It is well with my soul
And through it all, through it all
My eyes are on You
And through it all, through it all
It is well Lord
And through it all, through it all
My eyes are on You 
And it is well with me
 
 
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