This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
May 19-25

This Week

PJ Pasquale hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

PJ has been home now for a little over two weeks. We were worried about his dog, Ellie, jumping all over him but she seemed to quickly understand his fragility. She is very careful around him. They both needed to be with each other again. Ellie lost weight while her “family” was gone for so long. She doesn’t understand peripheral neuropathy though and she steps on his feet sometimes! He barely fit in the adjustable bed that we got for him. He was very excited to be able to play his Xbox again. He has had friends over and has even gone to a nearby friend’s house to just “hang”. His close friends are very careful around him and help him get around and make sure he is drinking etc.. So even though it was nerve wracking the first time he left the house I knew he was in good hands! PJ is actually quit busy.  He has had multiple follow up doctor visits. He has PT and OT at home 2 times a week each and he has a Nurse who comes weekly to check on all of his pressure sores. He has 21 pills a day he needs to take and his vitamins on top of that.  We are tracking everything he eats in the Fitness Pal app. He is supposed to eat around 3,000 calories a day. Keeping him fed for his 3 meals and 2 snacks everyday is a daunting task. Uncle Hank and big sister, Frankie - (a big thank you to the folks at Strossners Bakery) bring him his favorite foods frequently and I have become a member of 3-4 home delivery apps like GrubHub. He is finally gaining some weight back. On our home scale he hit 150 lbs!!! 

His upper body mobility and strength is improving nicely however his PT for his lower body is severely limited because of all the persistent pain in his feet from the sores and the neuropathy. He is a trooper though and does his PT anyways. His big sister, Natalie, comes on some of the off days to do his PT and OT with him too. 


His pressure sores on his right foot and back side are healing nicely. The big one on his left heel is being very stuborn. The wound doctor said it will be at least another 2 months before they are fully healed. 


We finally got his special ordered wheelchair - sized to fit his tall skinny frame. He learned very quickly how to manuver around in his chair. Of course he would rather be driving a car. He turned 16 a week ago and he was supposed to get his drivers license then. 😩 


The wheelchair is padded and designed to fit him but it is such a cumbersome task to take it apart and load it in the car all the time! We are going to use some of his Go Fund Me dollars to rent or buy a second wheelchair so we can leave one at school once he goes back. A Big Thank You to everyone who donated! 


This week on Tuesday Oct 8 we went to his school for the first time. We met with people to finalize his Homebound and a plan to get him back to school for shortened days. That day was the Blood Drive in his honor so we visited there and watched the Red Cross in action. Very impressive! Thanks Mrs Trakas! And a Big Thank You to everyone who donated blood! 😍😍


PJ was treated like a celebrity at his school! He thuroughly enjoyed all of the attention. All of the staff and teachers are committed to helping him get caught up and return to school. We can’t thank them enough for all they have done and are willing to do to help PJ! ❤️❤️❤️


PJ has been able to get up our stairs at home to get to his bedroom!  So he is very happy to be able to sleep in his own - huge King sized - bed for the last two nights. Thanks Sherry!!!!


We took him to a Pediatric Neurologist who confirmed the diagnosis of peripheral neuropathy of both of his feet.  Today - Friday Oct 11- PJ will have an EMG study done. This is a nerve conduction study and it will give us a lot more information about his peripheral neuropathy. We are hoping and Praying that this neuropathy that is causing him such discomfort will eventually go away.  We are Praying that this EMG study today won’t be too painful for him! 🙏🙏🙏😬😬😬

 

Read the latest Journal Entry

10 Hearts • 6 Comments

SVG_Icons_Back_To_Top
Top