PJ’s Story

Site created on March 11, 2014

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.  Please note that this is being written on PJ's behalf, with his permission,  because he wants to keep people updated, but doesn't want to write the story portion.

PJ was diagnosed with Crohn's Disease in the fall of 2010, after having gastric bypass surgery in August of 2010, to remove a large mass in his stomach.  Since then, PJ has had multiple complications, including liver issues and biliary constriction, which have caused infections, and internal abscesses.  In October of last year, we were told that PJ needed to be seen at the Mayo Clinic, because they are the top research facility for Crohn's patients who's disease is not controlled well.

In January of this year PJ began his first visit to the Mayo Clinic, which lasted three weeks!  After many tests, MRI's, x-rays, ultrasounds and procedures, the doctors here have assured us that they will be able to help PJ to get the Crohn's under control, and start the healing process.

Newest Update

Journal entry by Susan Wade

We kept waiting to hear that we could go home, before posting another update, but that's not happening, so I decided to at least let everyone know that we're fine.

PJ is still having to get labs drawn every Tuesday, and labs plus clinic every Friday, because his anti-rejection med levels have been roller-coastering.  This week PJ didn’t have any med changes though, so we’re hoping that he is finally settling into his new normal.  So, unless any new issues come up, we should be able to go home after PJ is transferred from the post-transplant clinic to the regular nephrology clinic, on October 24th.  And, since PJ has multivisceral clinic on October 25th, everything will come together well, before going back home.

Thank you to everyone who has called, and sent messages to PJ.  It’s a nice break from the boredom of living in a hotel room with mom.
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