PJ’s Story

Site created on March 11, 2014

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.  Please note that this is being written on PJ's behalf, with his permission,  because he wants to keep people updated, but doesn't want to write the story portion.

PJ was diagnosed with Crohn's Disease in the fall of 2010, after having gastric bypass surgery in August of 2010, to remove a large mass in his stomach.  Since then, PJ has had multiple complications, including liver issues and biliary constriction, which have caused infections, and internal abscesses.  In October of last year, we were told that PJ needed to be seen at the Mayo Clinic, because they are the top research facility for Crohn's patients who's disease is not controlled well.

In January of this year PJ began his first visit to the Mayo Clinic, which lasted three weeks!  After many tests, MRI's, x-rays, ultrasounds and procedures, the doctors here have assured us that they will be able to help PJ to get the Crohn's under control, and start the healing process.

Newest Update

Journal entry by PJ Hanke

I'm actually writing one of these myself for once, 'cause I actually remembered and had the time at the same time. When We got home from Indy last month we made an appoint with, and I saw, my oncologist. As it turned out, my oncologist that specialized in post transplant EBV related cancers specialized in EBV related lymphomas, so he felt I would get better care from someone who specialized in sarcomas. When I saw oncologist #2 she ordered more tests to present to the hospital's liver board ASAP. The follow-up was scheduled for yesterday, but I came down with a fever suddenly in the small hours of the morning, and she instead went over the her and the board's recommendation over the phone. Before I dish out the real reason for posting I should add that at Mom's Hepatology appointment her doctor said he's a member of the board and that we don't seem to realize how serious this is, because there's only been 6 prior cases of this cancer by the NIH, and we need to find someone who's actually seen it before, even if it means leaving Texas again. He said we need as much help as we can get, because my body's been through so much, and am I up to the fight? Mom said he clearly hasn't met me, because I only seem relaxed because I'm so confident about being up for it. Getting to the point of this post, part of the reason why I'm so confident is because Ive been through the doctors' plan before. My profile picture above is when I got to ring the bell at the end of my previous course of radiation therapy. The board's recommended that I undergo another round of external beam radiation therapy. Even the rare and high mortality infection caused by the last course being the wrong treatment I still came out on top. I'll die when I'm good and g** d*** ready, and not until then, and that won't be until I can be certain I've saved enough children from my fight to make up for everything I've gotten.

-PJ

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