Journal entry by Emily Deblack —
I can't believe we started this crazy journey one year ago - Jan 10, 2020. A year ago we were told of all the things that could happen during the next 3 months and it was stressed that it wasn't a matter of if - we will have late night visits to the ER, being admitted between chemo session for a blood transfusion, nausea, fevers - but when they would happen. We were scared and ready for all of this but so very thankfully Piper didn't have any of this and we were lucky that she did so well.
This time last year the hospital and grandma/grandpas became our second home for 3 months. The medical staff at the hospital became part of our extended family. I can't believe it's been a year; in many ways it seems longer and in may ways it seems like it was just yesterday that we started this journey. I am so very grateful for the care and attention Piper (and us) received at the University of Minnesota Masonic Children's Hospital. I wish we could stop in to see the loving staff that helped us so much over those 3 months and I wish we could bring them a little cheer but because of COVID we can't. 😞
We count our blessings every day that she is healthy and being a normal 2 year old. Piper is growing into an amazing little girl. She is the light of our lives and I just hope and pray the hospital never again becomes a second home.
In May we will get blood work to see how much of her vaccines are still in her system; this will tell us if we have to start all over or if we can continue where we left off. We will continue to do our labs here in town and Piper will start having check-up with her physician every other month. I won't be posting much between now and May unless something changes.
Richard, Piper and I just want to say THANK YOU for all the well wishes and prayers we have received over the last 12 months.