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May 19-25

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Appointments finished. Went ok. He has to start glaucoma drops because there was a slight increase in eye pressure and they want to prevent ANY damage to his optic nerve because they said it’s really bad to have combo retinitis pigmentosa and glaucoma. He has very constricted vision in right eye. Left eye still has some peripheral. We go back next month to check in with glaucoma doctor again. The hospital LOST HIS DNA SAMPLE. They have the collection record but no updates after that and the genetic consultant who took the test no longer works there. They’re working on tracking it down. 😂🤣🙄

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