Paula’s Story

Site created on October 17, 2020

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Newest Update

Journal entry by Paula Weber

Finally I have an update for you.
Dr B said I’m doing well, but I have a new diagnosis: hypogammaglobilinemia.  A type of anemia created by the stem cell transplant and now taking the medicine, Revlimid, an immunosuppressant.  I’m guessing this is temporary, probably as long as I take the medicine.  It makes me more susceptible to infection and explains why I have been feeling so tired. I will be seeing Dr B monthly now for monitoring.  If I cannot tolerate this medicine, there are other options.  
My “bad” counts have dropped considerably, showing the transplant is working!  In November I will talk with Mayo doc and see if I can just try going off this medicine,  
I cannot get the MMR vaccine b/c it is a live vaccine.  So I will be wearing a mask in public for a long time and be careful around kids- especially any anti-vax families.  
 
we sold our home!  Moving day is Friday!  Moving to the Westside of Cincinnati.  Our new address: 391 Viscount Dr.  Cincinnati, OH 45238 
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