Jason’s Story

Site created on April 15, 2021

More than a year and a half ago, one of Jason Park's routine MRIs showed lesions in his brain that doctors couldn't explain. Given his history of brain cancer, this was particularly concerning. With the lesions being too small and close to dangerous areas to perform a biopsy, Jason and his wife Camille had to accept nearly monthly MRI appointments to monitor change and growth. It seemed increasingly likely that these lesions heralded the onset of MS, or even worse, inoperable cancer. The lesions have slowly grown, but still defied easy explanation, diagnosis, or consensus between the specialists that the Parks saw ever more frequently.

During this entire period, Jason has struggled with increasing symptoms for his mystery illness - nausea, increasingly poor eyesight, lack of energy, sudden severe and sustained weight loss, and more. From hospitals to doctor's offices and back again, Jason and Camille have struggled through tests, treatments, and uncertainty as they have fought to understand what's going on in Jason's brain and how it's affecting the rest of his body. 

In mid-April, Jason underwent a brain biopsy. The growths were finally large enough to make the brain surgery just safe enough to attempt. The biopsy went better than we could have hoped, but still has a long and tiring recovery period (up to 3 months). Jason has been doing well with the recovery, thankfully.


After the labs ran tests on the biopsy material, Jason and Camille were given a diagnosis of a brain cancer called germinoma. This is good news and bad news - germinoma has a higher treatment success rate than glioma-type brain cancers. However, his diagnosis is really surprising, because this is the same type of cancer that Jason had 13 years ago, which is not supposed to reoccur. The fact that it has means that this tumor is now considered a treatment-resistant cancer, making it quite a bit more complicated. Jason's doctors from Swedish, UW Medicine, and the tumor board have compared notes and more or less agreed upon a treatment plan, but they have asked for an independent evaluation to confirm the diagnosis because Jason's case is so rare and the presentation is unusual. 


The initial recommendation was that Jason should start treatment three to four weeks after the diagnosis, but trying to coordinate between specialists, having the insurance deny coverage for visits and treatments that their own doctors recommended, and the sheer novelty of his case keep on causing delays that are very frustrating with this type of diagnosis. 



This process and the treatment that is scheduled continue to eat away at the Park family's peace of mind, their time as a family, their ability to continue to provide for their children, and their savings. Thank you so much for visiting the Park Family CaringBridge site to offer hope and encouragement or look for ways to help. We will be using this site to keep family and friends updated in one place. We so appreciate your support. 

If you're a first-time visitor, or haven't explored this site yet, here are three places to check out: 
- Journal Entries are current updates on Jason and Camille - how they're doing, what they've heard from different treatments and appointments, what they need prayer for right now.
- Ways to Help links to the Planner that lists specific needs the Park family has that are up to date and you can select to let them know they don't need to worry about taking care of those things themselves; it also links to the Jason Park Recovery GoFundMe page, if you have been led to help support the Park family during this process.
- Last but not least, each time you visit, please drop a note or a quick smile in the Well Wishes section. Jason and Camille receive these messages of encouragement and can read them over and over again to remind themselves when they're feeling alone and scared that they are surrounded by people who love them and are praying for them.

Newest Update

Journal entry by Camille Park

RESPITE.  This has been the word echoing throughout my entire being for months on end as I have craved some relief - some small lessening, a short break - from grief and trial and difficulty. If you've asked how you can be praying for us at all during this time, you've probably heard me say this word. My soul has called out to God at a loss for any words other than, "Please have mercy. Please allow us some respite."

Over the last several months, Jason has been having seizures, had two unexpected hospital stays, and had an MRI that alerted the doctors to two new spots in his brain and one in his spine. We waited anxiously for another MRI in August to give us a clearer picture of what was happening and our hearts faltered and despaired in the waiting and fatigue. Finally, a chance to meet with the neuro-oncologist, and since then, things started to unravel - in a GOOD way!

Jason was put on anti-seizure medication, which so far has eliminated his falling spells and significantly diminished the instances of seizures. RESPITE. And all the neuro-oncologist had to tell us was that the new spots in Jason's brain and spine had all either disappeared or significantly shrunk! RESPITE. The spots apparently might have been swollen blood vessels, scar tissue, brain trauma, a shadow in the scan... nobody is sure, but the plan is to just continue on with MRIs every three months and keep an eye on those areas along with everything else! RESPITE finally.

In the wake of these close calls, Jason has decided he'd like to try to start working a little bit again. With him being steadier on his feet, and getting help through acupuncture, massage, medication, etc. to keep his nerve pain under control, he feels that establishing a routine and purpose rooted in work he is passionate about can only aid in his recovery at this point. We are hopeful that doors will open to enable this transition to go smoothly for him.

We are both so grateful at how you all have shown up for us again and again over these last several months. There have been so many things - big and small - that have touched our hearts and eased our burdens. Our fireplace mantle is covered with cards and notes you have sent, hand delivered, and left on our doorstep. You've blessed us immeasurably by providing meals and contributing to our GoFundMe account. We are so thankful for you!

Many of you have asked again recently how you can be supporting us. With Jason planning to start working again, I need to get back into his office to get it ready for him to use with clients again - and also finish everything that was put on pause abruptly when he got his diagnosis. So I'm wondering if anyone has time to come down for a work day to help me? I need help cleaning, installing curtain rods/hanging curtains, finishing painting trim around windows, setting up a small shelf, etc. If you are able and interested in helping (and local, obviously!), could you please reach out to me in the next few days?

With gratitude ~

Camille

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