Owen’s Story

Site created on July 24, 2023

Last Saturday 7/22/23 Owen fainted and fell down the stairs at home. While getting him checked out at the ER the doctors discovered he had not only a concussion but also a congenital defect called a Chiari Malformation at the base of his skull that is restricting the movement of his spinal cord. one side effect of this condition can be syrinx (a small fluid filled cyst inside the spinal cord) it was discovered that Owen has this condition as well. Currently we are in Helen DeVos Children's Hospital doing tests and waiting for decompression surgery and several other tests to determine what life will look like in the weeks to come.

Newest Update

August 14, 2023

Journal entry by Sharon Owens —

Owen is doing great the doctor said! He still has some healing to do but his staples are out and now we can start pt and figure out school. 
Read More of the journal titled "August 14, 2023"
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