The number of the day is “1”!

1 day until Owen is completely off cyclosporine

1 day until his cast is removed

1 week until he starts daycare again

Owen’s immune system still isn’t 100%, but starting tomorrow we’re officially off “BMT Protocol” so he’s able to go out in public, eat food from restaurants, and eat all the “forbidden” foods such as fresh berries & deli meats (it’s the little things in life). He has quit wearing masks for walks in the neighborhood and playing outside, but will likely continue to wear them for crowded stores/events. 

His kidney function has *almost* returned to normal, and he is crushing his pre-transplant weight. He will begin his catch-up schedule for vaccinations sometimes in the next month or two, which will stretch for a year or more. We are also focusing on catching up on some of the developmental milestones that have been on the back-burner for the last 9+ months; we are seeing gains in his speech and independence, which is very encouraging. 

We are finally in the home stretch, and while we will be following up with the BMT clinic for years to come, Owen will become a “regular kid” in pretty much every way. We will always have to be vigilant with keeping an eye out for symptoms of GVHD, and I will probably always over-react to any illness. But day-to-day will be pretty boring, and BORING IS GOOD.