Oscar’s Story

Site created on June 25, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Oscar got home from college in late May and started his summer job in landscaping with Sodexo.  They run the grounds keeping office at Southwestern College where Ross works.  In mid-June, Oscar started having bad headaches and could hear his heartbeat in his ears when he exerted himself.  After about 10 days or so, of hydrating better and getting more rest, with no impact on the headaches, we took him in to our family doctor.  They initially thought it was tension headaches, but wanted to get blood work done both to get a baseline for wellness checks and to rule out anything more serious.  

That was Wednesday, June 20.  On Thursday, they called him and said there was an error with his blood work and asked him to go to William Newton Hospital in Winfield where they had sent the blood the day before to get a fresh blood draw.  Later that evening, when Oscar, Arthur and Erika were playing a concert with Winfield Municipal Band, the doctor called him and left him 4 messages to call back.  When the concert was done, Oscar saw those messages and played them back in the car on the way home.  He called the doctor immediately and the doc told him he needed a blood transfusion to address critically low red and white blood cells and platelets.  He should expect to stay overnight at William Newton.  Oscar and Ross arrived at home, gathered stuff for an overnight stay, and went to the hospital.  After two units of blood and a new set of blood tests, he was still very low on some blood cells and was scheduled for a bone marrow biopsy on Monday, June 25 in Winfield.  We were discharged Friday morning and sent home to wait out the weekend.  In the afternoon, we went up to the Wichita Airport to pick up Oscar's girlfriend, Megan, who was visiting - coincidentally - on that weekend.  

As we talked to friends and relatives, some of whom work in the medical field, and got connected with physicians through them, we heard over and over that Oscar's numbers mean he should be in the hospital.  On Saturday morning we called the hospital to see what doctor from our family practice was on call and got one of the doctors there.  She helped us puzzle through options and agreed that we should head up to Wichita to Wesley Medical Center.  So we gathered up stuff for a few nights of overnight stay, called the pet sitter and headed up to Wesley.  With the heads up from our doctor in Winfield, they were expecting him in the ER at Wesley, took blood right away, did the tests, and then admitted him.  We were in a private room within 90 minutes of arrival.  They said the condition that he is suffering from is called Pancytopenia - basically just a description of the condition of having critically low hemoglobin (red blood cells), white blood cells and platelets.  Just so you know, his hemoglobin was below 6 in the first round of tests in Winfield, and remained below 7 even after the 2 units of blood on Thursday night/Friday morning.  Normal range is 14-18 for a person his age.  His white blood cell count was 1.8 and went up to 2.1 after the two units of blood - normal range is 4-11.  His platelets after 2 units of blood were at 14 - normal range is 130-400.  The Pancytopenia was definitely a compelling and serious condition.  They doctor in the ER and the hospitalist both told  us that there were 3 groups of things that caused Pancytopenia - 1) infections, and infectious processes - basically illnesses caused by tick bites, or parasites, or viruses, including mono and HIV, 2) auto-immune diseases and processes, and 3) chronic anemia, like aplastic anemia, lymphoma and cancers like leukemia.  A bone marrow biopsy was necessary to get a definitive diagnosis, but they could still rule out lots of things with just the blood.  They sent us up to a room on the Oncology floor.

Newest Update

Journal entry by Ross Peterson-Veatch

Short Version:

Tears of joy and relief - we got remarkable news last week! Oscar's immune function is back within "normal range". This means, effectively, that he's cleared the woods, and is now back on his path as before. Since May he's set himself up in a rental house, started a long-term paid intership, and gotten back to college in person this fall. It was a blessing to hear that he's back on track. We are grateful to all of you who supported us along the way!

Long Version:

Since the last post in May, we've been waiting to get results of the immune function tests. Oscar was going to the clinic in Milwaukee about every month to six weeks, but the blood draws for his immune function test kept getting messed up, so we were not able to get results. The last immune function test they had him scheduled for was earlier this month. While they didn't give him specific numbers for his T-cell count, the nurse practitioner that's been managing his case since the beginning used the phrase "within normal range" which, of course, was huge.  

Between the last post and now, he moved back to Rock Island, Illinois to a rental house in June. He started a long-term paid Physics research internship with one of his professors at Augustana College (which continues during the school year), and so was able to spend his summer working from home like all the rest of us! He started his in-person college classes after Labor Day, and has so far been doing well with that. He was already happy and optimistic about this semester, and now he's relieved, and excited too.  

I probably won't post much anymore on this thread since, in essence, this is the end of this story. We have been and continue to be immensely grateful to all of you for your support, your love, your prayers, good energy, positive vibes, financial help, cards, letters, emails, texts, and every other good thing that came from you over these last 28 months (yes it's been that long...). You have blessed us! Thank you so much!

 

Patients and caregivers love hearing from you; add a comment to show your support.
Help Oscar Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Oscar's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top