Journal entry by Stephanie Kannas —
Olivia had an anal dilation today under anesthesia to make pooping easier. Dr Potter was able to dilate Olivia to a size 17 in the operating room. He also put a chemotherapy drug (Mitomycin C)
around her opening to help prevent scarring. The size 17 dilation stretch was held for 3 minutes. She was away from Mom for 31 minutes total. The goal is to keep Olivia dilated to a size 15. We will start dilations again twice daily. Hopefully Olivia will do well. It may take 2 parents now as Olivia is much stronger. An interesting fact is that she can stay at a size 15 until she is three-years-old.
We had a great experience in the PACU today with our nurse Linda. Olivia got a surgical cap with ladybugs. She liked playing with the face mask. The best part was after the procedure, eating goldfish crackers and teddy grahams at the same time.
Two weeks ago, Olivia had a kidney ultrasound and she is doing great. Dr Gargollo said Olivia is the poster child for cloaca.
We do not need to see Dr Potter until September and we do not have to see Dr Gargollo until February 2019. Of course if we develop urinary tract infections or have problems pooping we can go in earlier.
Overall Olivia is doing great. She is starting to run. She is starting to say her words and able to communicate what she needs. She loves playing at daycare and touching everyone’s nose including Barkley’s nose and Mr Cat’s nose.
around her opening to help prevent scarring. The size 17 dilation stretch was held for 3 minutes. She was away from Mom for 31 minutes total. The goal is to keep Olivia dilated to a size 15. We will start dilations again twice daily. Hopefully Olivia will do well. It may take 2 parents now as Olivia is much stronger. An interesting fact is that she can stay at a size 15 until she is three-years-old.
We had a great experience in the PACU today with our nurse Linda. Olivia got a surgical cap with ladybugs. She liked playing with the face mask. The best part was after the procedure, eating goldfish crackers and teddy grahams at the same time.
Two weeks ago, Olivia had a kidney ultrasound and she is doing great. Dr Gargollo said Olivia is the poster child for cloaca.
We do not need to see Dr Potter until September and we do not have to see Dr Gargollo until February 2019. Of course if we develop urinary tract infections or have problems pooping we can go in earlier.
Overall Olivia is doing great. She is starting to run. She is starting to say her words and able to communicate what she needs. She loves playing at daycare and touching everyone’s nose including Barkley’s nose and Mr Cat’s nose.
Help Olivia Stay Connected to Family and Friends
A $25 donation to CaringBridge powers a site like Olivia's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?
Comments Hide comments