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For those wondering what VACTERL is and how it affects our sweet boy:
VACTERL stands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities. Traditionally, neonatologists have considered it a syndrome, though you will now hear some call it an association. Neither is incorrect. Oliver has the A, T, E, and R that we know of at this moment. The V often presents itself later as scoliosis. In that case, he will more accurately be diagnosed with VATER. Typically, 3 of the acronym letters must be present for this diagnosis.
Oliver will undergo genetic testing to see if this syndrome is part of any other disorder which is sometimes the case. While the actual presence of the syndrome is random and no specific cause exists, a pattern does actually exists for the patients. Almost all babies present with the A, T, & E together. We are thankful that Oliver so far has only presented with 4 of the anomalies. It could be much, much worse.
It's safe to say that all of us will spend the next weeks and months learning everything we can about this rare condition and we will happily share with you. Knowledge is essential to being the best advocates for Oliver as well as for his parents. Oliver will likely go on to live a relatively normal childhood and adult life with minimal lasting affects. Thank you for your continued support and keep those prayers coming!
