Journal entry by Leah Johnson —
The last of Norah’s results of her heart cath and biopsy from Monday are finally all in! Her pressures are all great and unchanged from the last one. Biopsy was 0R with no AMR and her antibody panel is negative!! Her tacrolimus level is low again unfortunately, so that dose increased. Her wbc is low again (2.7) but her neutrophil count is fine and so it’s likely from meds and bactrim (antibiotic) stopped. We will do labs again in 2 weeks and she is able to be unmasked and in public because of the neutrophil count. They decided to lower one of her immunosuppressants, cellcept, in hopes to increase her immunity a tiny bit so she doesn’t catch everything, but still suppress it enough so her body doesn’t reject her the new heart.
The best heart cath results we could ask for! We will never be able to thank her donor family enough for giving her this perfect heart. It’s amazing that her body is taking it on as it’s own so perfectly. We are beyond lucky our girl got this second chance at life. Thank you for all the continued prayers and thoughts! Norahs got HEART! ❤️ It’s a happy 6 months post transplant!!!
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