Nolan’s Story

Site created on June 25, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Brynna Coutley

Nolan has had a lot of great things happen the past couple months. As we look back to this time last year we think about how blessed we are to have him and how far he has come. One huge milestone for him is we have not been using his gtube for a little over a month now. He is taking everything including medication by mouth. He is still a skinny little guy but as long as he keeps gaining weight we can keep feeding him this way. 

 

We are going to have our hands full with this one as he is already a little stinker but we wouldn't have it any other way. ❤️


This holiday season we are so thankful for our family.  🥰 Merry Christmas and a Happy New Year!

A few fun facts from October/November/ December:
Nolan started officially walking in the beginning of November. 

He started saying Connor. 

He got his first hair cut in October!

He went to his first parade in downtown Green Bay. 

He had another Echo to check his heart and he will have another in about 6 months. 

He got almost all of his teeth including his canines. Just waiting on one more bottom one to come in. 

He stopped taking his omeprazole in October. 

He dropped to one dose of cyproheptadine a day from two in early November. 

He got to meet Santa a few times and isn't quite sure about him 🤣

Family photo credit with Santa:

A.E. Photography LLC

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