Hello, friends. I know it has been a long time since I updated you all, so I thought I would give a super quick update. Thank you for following up with us and praying for our family as we continue this journey. 

Noah has handled the last three cycles of Maintenance like a champ. He has settled into taking his required fluids and meds orally, and because of this we were able to take out his ng-tube (nose to tummy tube) in January. He has wasted no opportunity to be 'nake-y' and also loves the freedom to be able to dress himself and subsequently change his clothes at least a few times each day. Our family has settled into a "normal" (about as normal as you can get in the ever shifting season of preschool/toddlers at home and the also every shifting presence of COVID restrictions). We are so thankful for the encouragement and support of each of you, for your prayers, your practical helps and your friendship. We continue to feel upheld and loved by our church family, friends near and far, and of course by our Heavenly Father. We pray that through His strength, we may continue to run this race with endurance and steadfastness, clinging ever tighter to the cross of Christ and walking in His strength.