We have so much to be thankful for. Most of all that Noahs heart is looking amazing, even off of his heart med, Digoxin! We are so thankful for his amazing team that has helped support his heart throughout his healing and recovery from his open heart surgeries and heart infection. He has come such a long way and it finally feels like his heart is in a good place! He is doing so well that he doesn't need another cardiology follow up until October! So wild. It is surreal to be at such a different place than we were a year ago. All last summer his heart was under constant surveillance. It couldn't be trusted and he had so many scary "what ifs" on the horizon. Now we get to not think much about his heart all summer long. What a miracle!

Noahs neurology appointment a couple weeks ago was pretty uneventful. They are trying to determine if he has higher tone in his left leg currently. It is obvious in his left arm and hand, but they determined that yes he does have slightly higher tone in his left ankle and maybe his hamstring area. But the biggest thing I take away from neuro is always that the brain is a mystery! They make all sorts of scary guesses about how impactful this will be on his life and what kind of limitations he will have, but we see him do things every day that seemed impossible almost a year ago. So we lay it at the Lords feet and remind our hearts not to worry about tomorrow, for today has enough worries. 

We decided to go ahead and switch up Noahs physical therapy and got him evaluated at Childrens outpatient. They were very pleased to see that he is attempting to use his left arm, and feel that an intensive physical therapy season would be more beneficial than botox injections. So we are hitting PT hard this summer. I'll be taking Noah to PT twice a week at Childrens Therapy Center. It's going to be hard work for our bud but he is so motivated and determined to be independent. We are hoping and praying for major breakthroughs for him and lots of strength and dexterity for that left arm. Theyre wanting him to see their hand specialist and see if we can get him fitted for a splint to help him stretch out his left thumb while hes sleeping. And he'll keep working hard during his in home OT sessions. Noah is currently scooting across the floor, tenaciously working on pulling himself to standing and cruising along surfaces that are easier for his left hand to grab a hold of. We are so proud of him and already in awe of the ways the Lord is shaping his personality through these extra trials he has. He is a joyful little dude.

Right now Noah is doing so well. The future will always be unknown, and there are always things I can be fearful of, but right now we basking in our sunshiny days with a healthy and happy little boy. We're leaving for a family vacay tomorrow until May and there could not be a better way to ring in Noahs first year of life. Thank you Jesus for this boy.