Nicolas Elijah’s Story

Site created on June 28, 2008

Nicolas Elijah was born on May 31, 2008 with severe Shone’s complex, which includes coarctation of the aorta, pulmonary stenosis, ASD, and VSD. He has also been diagnosed with cerebral palsy and has suffered from immune system and blood clotting issues. He has undergone 4 open heart surgeries, 12 heart caths, and 2 eye surgeries. His journey continues as he will need ongoing care to maintain and replace his artificial valve and monitor narrowing of his blood vessels.

Two days after his birth the doctors gave us the news of his condition in a private conference room. They said it was very serious and they could not even promise his survival. As we broke down the doctors left the room and gave us some time alone. In brokenness we cried out to God and prayed that He would not only allow us to accept this trial but that He would use it to glorify Himself. We have seen Nicolas grow up to be a smart, kind, and compassionate young man. His life has impacted many people and he is a joy to be around. We pray that his story has and will continue to encourage people to see that God is faithful in the midst of suffering and His grace is more than sufficient in our times of need.


Newest Update

Journal entry by Nick Lane

Hi Everyone!  We just wanted to give you a quick update. Nicolas had his follow up cardiology appointment and everything is healing well and he is free from infection! His next cardiology appointment won’t be for three months. So we are grateful and rejoicing in all God has done! He is getting stronger everyday and his endurance is improving. He is still getting physical therapy once a week and has a follow up appointment with the kidney doctor in a couple weeks but it’s been amazing to see how well and healthy he is. We took a little scouting trip out to Austin to look around last week and had a great time. We are now packing up and getting ready to leave Houston and head out to Austin. Nicolas was blessed with a travel trailer from the Make-A-Wish foundation and we will use it to live in while we find a home. We have really enjoyed Houston and it holds a special place in our hearts but we are excited to see what is ahead in Austin. God keeps reminding us to just go one step at a time and not to look too far forward. Our faith has been stretched is so many ways in this journey and we have seen God be faithful in each and every circumstance.  We appreciate your continued prayers for all that is ahead. 
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