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May 05-11

This Week

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"Missing from their Minneapolis home.......a 31 one year old male, double lung transplant patient, and his care giver mother.  Last seen on August 14 at pulmonary rehab.  Please contact the authorities if you have seen these 2 people."

The above statement really hasn't been posted anywhere, but that's how it could be written if indeed it had been.  Our lives were kind of turned upside  down in a hurry on August  17.    Early in the day,  my mom had called me to tell me that my dad (Nick's Grandpa)  was going to  be put in hospice the next day.    Knowing that my dad's days here on earth were numbered, I called the transplant coordinator  to see if we could move Nick's last appointments scheduled for Sept. 1 to a closer date.   She got the ball rolling, and called back with in an hour  to tell us that Nick would have his scheduled endoscopy on Aug.  20,  with his follow up appointments with the transplant doctor on Aug. 21.  Provided everything looked good, we would be able to leave for SD after that appointment.    We were excited that the days up in the city were less than a week, praying that nothing would disrupt that plan.

Later that same afternoon, my brother called and said that my dad was declining rapidly, and the end days were  near.  Nick was listening to the conversation, and as soon as I got off the phone,  he looked at me and said "Mom, you  have to go home!"   I countered his statement with the fact that I WOULD NOT leave him alone in the city without a caregiver present.    Nick looked at me   with tears in his eyes and emotion in his voice and  said "You need  go home NOW,  You have to leave right now....go pack your bags and head home"  Had he not been so persuasive and emotional, I would have not even entertained the  idea of heading home without him.

After phone conversations with Bill and Tasha, Tasha said she would leave within 30 minutes, get to the cities in 6 hours, then I would head home.  Nick would not hear of me waiting until Tasha got to the city to head home.    He told me to get packed and head home.......he wasn't in any high risk of anything happening before Tasha got here.  So within 30 minutes, I grabbed my suitcase and bare essentials, and drove out of the city for the first time in 6 months.  I told Nick that I had never driven out of the city without him doing the navigating, but he assured me that I would be fine.    With less than an hour between the conversation with my brother, Tasha was on her way to the city, and I was on my way home.    

Nick's raw emotion convinced me to heed his advice to go home.  I would not have left had he not been so  concerned, loving, and relentless.  He is wise beyond his years.  I was able to get home early Tuesday morning, and spend the day with my mom by dad's side at the nursing home all day Tuesday.  Dad passed away late Wednesday afternoon.  Had Nick not been so positively  determined to send me home, I would not have gotten a chance to say goodbye to Dad after being gone 6 months.

I know these last paragraphs sound like they are all about me, but it is really the background story of Nick.  His pure selflessness, compassion,  and determination is what sent me home.  He understood that if I didn't leave "NOW",  I probably wouldn't have been able to say goodbye to dad.  He understood that I had been his caregiver for 6 months, now it was his time to care for me.   He cared so much that he convinced me to leave my post, and hand it over to Tasha.    As simple as that sounds, it was very hard for me to leave, knowing that Tasha had not been briefed on all of the meds, schedules, appointments, ect.  But knowing that they would be coming home Friday, it was a little easier leaving.

Nick and Tash were able to leave Minneapolis on Friday.   Oh happy day!!  We have waited for this day for months!!  All day Friday, Vicar Andy was texting me to see what time they would be coming  thru town.   He said a few people from church wanted to welcome him back to Scotland.  After countless "random" phone calls with Tash to see their what their ETA would be,  Nick  was getting a little suspicious that something was up.  But his suspicions could not have imagined the Fire department escort into town thru main street to all the welcoming community , church and  family  members.  It was  a welcome home  that he will always have engraved in his heart.  The love from your church family and community to welcome you home is medicine very good for the soul.  Thank you everyone!!

Nick was able to be home a couple of days before his Grandpa Schaeffer's funeral.  He was able to be at the funeral and be  pallbearer.  I think we were all a little nervous about Nick being in a setting with this many people right after he got home from his lung transplant, but we knew it was important for him to be present, if possible.   God  covered him with His protection, and all the rest  the family, to be present to send Grandpa  off to  his Eternal home.

Thru this whole lung transplant process, we have seen God's perfect timing for Nick's lung tranpslant to take place.  Even tho it has been a longer journey than we expected, we have seen many little signs and reminders that this all happened in God's perfect timing.  Even at the very end, for Nick  and  I to be able to be home in time to be present for Grandpa's funeral, we see His perfect timing as well.  God is good!  Even when events may not be good, God is still good.  And if we watch and observe, we can see His goodness all around us.  We just need to open our eyes, observe and SEE His Goodness.

Nick had a return appointment 2 1/2 weeks after his dismissal to go home.  His PFT is not rising rapidly, but it is increasing.  He continues with labs 1-2 times a week, with all the meds, breathing treatments twice a day, and  will soon start rehab in Scotland.  We are currently in the city for Nick's endoscopy today and follow up appointments tomorrow.  He is supposed to return to UNM for another endoscopy in 4 weeks, and we'll find out tomorrow if he needs to come back for a doctor's appointment before then (we are hoping for a 4 week spread between appointments).

Nick has been outside as much as possible since he got home.  We have to remind him that he is still recovering,  needs to slow down, and still needs to rest for a bit during the day.  He is trying to make up for lost time.   He is happy to be home, to see his "Girls" and their families ( cows and calves), to be a part of harvest preparation, and harvest.  All those things are good medicine,  great rehab, and  have great healing qualities.  Let the healing continue!

 

 

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