Nick was allowed to continue treatment in Washington DC vs. John Hopkins in Baltimore at the end of February.  Since that time he has been declining. His fatigue is intense causing him to sleep 16+ hours a day, and he experiences dizzy spells, loss of balance, and headache spikes at the base of his skull.  At first, they thought it was a drug toxicity. After they cut back on the drugs, it did make a minimal difference. 

Yesterday Nick was scheduled for his bone marrow biopsy. His blood counts are back to normal and looking great. We haven't gotten the results from the biopsy, but everything points to a successful bone marrow transplant. The nagging question remains, why isn't Nick improving? When the doctor saw Nick and listened to us, his thoughts were the AML had spread to his spine. The spine and nervous system operate separately from each other. While we were at Hopkins yesterday, in addition to the biopsy, they also performed a spinal tap to capture fluid to examine. At that time, they also administered chemo directly into his spine. 

This morning it was confirmed that the AML has indeed metastasized to Nick's spine. This has been a shock and devastating news for our family. We are mentally taking this in and regrouping. We will continue to fight and not give up hope. It is not good that it metastasized. Starting Monday, I will drive Nick to JH in Baltimore twice a week for lumbar punctures to administer the chemo. Keep us in your prayers and keep in touch. We appreciate the support.