Nic’s Story

Site created on August 19, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement - it truly gives both of us strength to keep going. Thank you for visiting.


Multiple Myeloma, commonly referred to as Myeloma, is a cancer of the plasma cells found in the bone marrow. A plasma (blood) cell is a type of immune cell that produces antibodies to fight infection. The cause or causes of myeloma remain unknown.


Although there is no cure yet, myeloma is treatable, with many patients going on to lead full lives for years after diagnosis. With increasing research and emerging treatments, the overall outlook for patients is improving steadily.



Nic was diagnosed with smouldering Multiple Myeloma in June 2016. That meant the cancer was inactive and he was put on a “watch and wait” treatment, where he would go for blood tests every 3 months to make sure there was no M-Spike detectable. We continued this for the next 2 years until things started to change in June 2018. Nic started to experience intense bone pain and the next round of blood tests confirmed that the cancer had indeed become active. X-rays, CT Scans and an MRI showed that Nic had numerous bone lesions throughout his spine, ribs, femurs and skull. The myeloma cells were present in 76% of his body. Further tests showed a tumour on his spine, along with a fracture in his vertebrae. Treatment started within the month with radiation first to shrink the tumour. This was followed with 2
surgeries to help his back - kyphoplasty to use cement to fill in a collapsed vertebrae where the fracture was, and sacroplasty to fill in the holes in the sacrum to improve stability and reduce pain.



After these successful procedures, Nic started on his chemotherapy treatment called CyBorD (cyclophosphimade, bortezomib, dexamethasone). This would be done on a weekly basis for the next 16 weeks. Nic just finished these 4 months of treatment earlier in November and it was a great success. Not only were the results exactly what his doctors were hoping for, but Nic fought through this time like the Warrior he is. I have never been so proud - he put his head down and pushed through these treatments with such immense strength, all the while keeping his sense of humour and no complaints. It wasn't without some bumps in the road of course - including another broken vertebrae and another kyphoplasty surgery to repair it, just this past week. Once again, it was a one hundred percent success.


After all of this, believe it or not, now starts the most difficult part of Nic's journey. He will have to have tandem stem cell transplants, one right after the other. Simply put, this is a process in which they take his own stem cells out of his body, freeze them, give him a high dose chemotherapy treatment, and then give him his stem cells back. The process is starting today (November 24th) with stem cell mobilization to get him ready for stem cell collection on November 28th. From this point on, either he or I (likely me because I have control issues haha) will update this site through "journal" entries. We feel this is the easiest way to keep everyone updated on how he is doing.


So if you've made it this far, thanks for reading and thanks for coming along with us!!! We love you all

Newest Update

Journal entry by Kristy Ahola

It’s been a while since I’ve updated this site, but we’ve been busy enjoying life and trying to take a little break from all this. Nic has been doing amazing - he’s recovering very well from the tandem transplants and regaining more and more energy every day. At this point he is in complete response with no detectable signs of the Myeloma protein in his blood. We are so very grateful for this because we know so many others don’t get to this point in their fight with Myeloma. They say everything happens for a reason and, while sometimes it’s hard to figure out what the reason is that anybody has to deal with such a terrible disease, we have decided to use the lessons this has taught us to our advantage. We will be sure to live each day to the fullest together and always remember and give thanks that we’ve been fortunate enough to be where we are. It’s so easy to let the small things get you down, but this past year has put a lot into perspective for us - when it comes down to it, nothing matters as much as the health of your loved ones. So many other things in life are in our control to change - cancer is not. We’ve bought a new cottage on the lake and have been taking the time to relax and enjoy making new memories with each other, our families and our friends. The things that really matter. Today as I write this, we’re back at Princess Margaret to start Nic’s new chemotherapy routine. This will be something he has to do every other week to keep the cancer away until they find a cure for Myeloma. It’s a lower dose maintenance kind of chemo and we’re hoping the side effects are minimal and Nic can continue to live the life he so deserves. As for me, this past year has also stirred up a fight in me that I didn’t know I had - I will continue to be an advocate for Myeloma education, awareness and quality of life for Myeloma patients. I believe in a cure. 
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