Gigi’s Story

Site created on June 21, 2019

Welcome to my CaringBridge website. I'm using it to keep family and friends updated in one place. I appreciate your support and words of hope and encouragement. Thank you for visiting.  

The ZEBRA logo, or mascot, was originally designed in 2003 by the Carcinoid Cancer Awareness Network (CCAN), now known as the Neuroendocrine Cancer Awareness Network (NCAN). This is, perhaps, why many refer to us as “The Original ZEBRA.” According to The National Geographic Society, the zebra has the most unique coat of all animals. And each individual zebra has its own striped pattern, as unique to it as fingerprints are to humans. In fact, no two are exactly alike. Just like NET patients. No two NET Cancer patients are the same.

What’s more, in medical school students are taught that when they hear hoof beats they should think horses, not zebras. In other words, look for the common not the uncommon or rare. The zebra is our way of reminding doctors that the uncommon exists and should not be overlooked. (NCAN, 2019)

Newest Update

Journal entry by Gigi Edwards

Hi everyone I know it's been a while since I've posted. A lot has happened. I'm now in Texas. A lot of you already know Texas is home for me and I must say it feels good to be home. I've had some good days and some bad days. For the most part it seems I'm fighting with a lot of fatigue and some off and on abdominal pain. I won't complain. One of the ladies in my NET support group aged 37 passed away on Christmas Eve from NET. She was diagnosed in July 2019. She had numerous of surgeries and fought until the very end. Very sad.  It made me think...I was Diagnosed in May 2019 and I thank God I'm still here and doing fairly well. I had my every 3 month labs drawn and some of them came back elevated, still within normal limits but higher than what they were 3 months ago. My endocrinologist back in Virginia didn't seem to be worried. He stated that we will continue to watch the upward trend. I have my Gallium Scan on Friday and I have to admit I am very anxious about it. That's all I've been thinking about. The one thing we do know is at some point unless I die from something else, I will be told this cancer has metastasized to one of my major organs. It sucks that out of all the cancers I could get (as if there is a good one to get) I get the one that is incurable.  My prayer is that it will not be Monday 01/06/2019 (my follow-up appointment). I'm praying that I get told "NED", No Evidence of Disease. Then I will press on and continue to deal with symptoms and wait for the next set of 3 month labs and 6 month Gallium Scan. This is my new life...my NET journey. Please continue to pray for me. I'm praying for a healing miracle. 
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