Seizures are still pretty strong. The follow-up with Morgan's Urologist after her surgery was interesting. He came in and said he was surprised that she is still having infections. 

The plan is to use a catheter through the vesicostomy (artificial bladder opening) and drain Morgan's bladder twice a day. If that doesn't work after 6 weeks, we'll do an antibiotic flush directly into her bladder. He trained me on how to place the catheter. A new order was placed to our medical supply provider and now we have a new thing to add to Morgan's routine. 

I'm still learning and getting comfortable with it. So far so good. I don't know if it's helping yet. Time will tell. 

We've been updating her Epileptologist and he has increased her CBD to continue fighting the seizures.

Her VNS signal with go up again on the 20th, continuing the process of titrating to therapeutic levels. 

In the meantime, Morgan started in-home physical therapy, and she loves it so far. I think it's a relief for her to get up and moving. To feel good enough to get and move. 

I followed up with palliative care. They are helping me keep track of all the moving parts.