Mindy’s Story

Site created on June 28, 2018

In mid-June of this year, I was diagnosed with breast cancer.   

I don't have a strong family history of breast cancer. I'm relatively young --47. Women don't generally get breast cancer until they're 60 or older the doctors say. I'm pre-menopausal -- another rarity for breast cancer I've learned. I really didn't believe I could be that person -- a person with breast cancer. I still don't think I really believe it. But I am and here's my story.

As a result of breast surgery about 10 years ago to remove a benign lump, I've been doing mammograms consistently every year. Back in February of this year during my routine mammogram, the radiologist found an area that concerned him -- calcification, he said -- very common, but he wanted to check it out to be sure the cells weren't pre-cancerous. I was concerned, never having had an irregular mammogram before, so had the biopsy a week later and was relieved to learn that all was fine -- no cancer. 

Fast forward to May, when I had my annual gynecological exam. During my exam, my doctor asked if a lump in the same breast that had been biopsied just four months prior had been there before. I said I thought it had, but I've always had dense breast tissue so lumps here and there have been common for me. And, I had just had a thorough exam and biopsy of the same breast a few months ago. She ordered another mammogram and sonogram, just to be sure there wasn't a problem with scar tissue or otherwise. I scheduled the appointment for a few days later, fully expecting to go through the motions, just to be sure.

At my second mammogram in less than six months, once again, the tech came out after the initial images were taken to let me know that they needed some additional pictures. Then the sonogram, then another visit with the radiologist, which I've learned never leads to good news, at least for me. He showed me the difference between the scar tissue from the previous biopsy, scars from my previous surgery and this other area, a mass he called it. He just couldn't be sure what it was and pushed for yet another biopsy. This time they confirmed -- I had a tumor -- breast cancer.

So, when you're diagnosed with breast cancer, a lot of stuff happens pretty quickly. I learned that my cancer is fueled by hormones, which is very common among women with breast cancer. The area they found is small -- about the size of the face on a quarter. This is good news too. The next step for me was an MRI of both breasts to determine if there are any other areas of concern so a surgical plan can be developed. Unfortunately, a number of additional areas of concern were found in both breasts -- not good news.  

For me, the next step will be a bilateral mastectomy with breast reconstruction.  Not an easy choice or an easy path forward, but hopefully, the best choice for me to make sure all my cancer can be removed and all the steps can be taken to make sure it doesn't come back. 

In writing this, I still feel like I'm describing another person. I guess it will hit me at some point.  Perhaps in sharing my story, I'll be able to begin to accept it, let it be real, and let myself feel it. I have no doubt this is a temporary bump in the road -- everyone has some kind of medical issue -- diabetes, heart problems, arthritis. This is just my thing for now, I guess. Those who know me know that I rarely do anything halfway and this will be no different. I fully plan to kick the shit out of this cancer and the good part is -- then I'll get to be a survivor.  

My quick and easy message for now is this -- this is how preventative care is supposed to work. You do what you're supposed to do, bad stuff can be found early and you can take the necessary steps to address the bad stuff. So if you've been putting off that mammogram, pap, prostate exam, whatever it may be, please do this for me -- DON'T. Stop now, pick up the phone and make an appointment. The consequences of not making that choice are just too important.

Updates to come as I have them. For now, thank for your thoughts, prayers and support. They mean more than you can know.

Newest Update

Journal entry by Mindy Carlin

I know it’s been a while since my last update. Over the past several weeks, I’ve been trying to get on with my post-surgery life. Work has been crazy busy. We got Danny back to school last month for his sophomore year at CNU. Summer feels like it’s slipping away, and while it’s definitely taking time, I’m getting back to my daily exercise routine — my runs are up to four-five miles and while I need to modify here and there, it’s been great to return to my yoga mat.

Weekly appointments with my plastic surgeon ended last week until my transfer surgery is scheduled. I continue to struggle to sleep with the tissue expanders, but healing seems to be going really well. 

In the meantime, I’ve been waiting for two important test results that will help to shape my next phases of care.

First — I received the results of my genetic testing, which uncovered the likely cause of my breast cancer. Of the 46 “cancer genes” that were tested, the results revealed a genetic mutation in the PALB-2 gene, which has been found to increase the likelihood of breast cancer by 30%-60%. This really validated my decision to have the bilateral mastectomy. Had I not made that choice, that would be among my most immediate next steps, so I’m very grateful to have that behind me. The most important implications of these results are really for my mom, sisters and nieces. While I had hoped there was not a genetic cause for my cancer, I’m hopeful that knowing this will help my family members make better informed choices about their health moving forward.

Second, after an initial meeting with my oncologist last month, I’ve been waiting to receive my oncotype test results. This is a relatively new genetic test of the pathology of my tumor that can predict the degree to which chemo will help to prevent reccurance of my cancer.

This week, I learned that my test results revealed that chemo will reduce my risk of recurrence enough to warrant the negatives that can come with chemo. It could definitely be much worse — the type of chemo recommended for me is relatively mild. I’m hoping not to need a port and I may even be able to keep most of my hair. My first chemo treatment is planned for October 2 and I’ll have a total of eight treatments, every three weeks for six months. 

I really have had mixed feelings about chemo leading up to my appointment this week. While my first instinct was obviously that I did not want to need it, at least I know I’m doing all I can to keep the cancer from coming back. 

Assuming all goes well, my second surgery to replace the tissue expanders will be pushed to the spring, when I’ve completed my chemo treatments.

The love and support continues to flow my way from friends, family and colleagues near and far, and I continue to be grateful and SO humbled by it all. The words “thank you,” just don’t seem to be adequate.

More updates to come as I have them.

For now, PLEASE schedule those screenings — nothing beats early detection!
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