It’s been a minute. Our last post about Milo was right before our third baby was born. We didn’t mean to wait so long to post, but life got crazy. Like, real crazy…. Here is a quick catch up and then onto Milo. 

We had a baby girl! Olivia Charlotte-Rey Ireland was born on June 29th. She is now about to be 6 months old and is happily enjoying foods and being entertained by her brothers. 

We moved! When Olivia was only 7 weeks old, we packed up everything in a week and settled into our new home in Fairfield CT. All of us are enjoying the extra space and the easy access to nature.

As for Milo, today is a big day. December 23rd is officially the 1 year anniversary of Milo being sent to the emergency room and PICU after having breathing issues and a scan showing a large mass on his lung. Wow, what a year it’s been for us, Milo and the world. Today was filled with a lot of emotions for us and there were definitely some hugs and tears shared. 

We have been a bit silent because, honestly, it’s been really tough.  Since our last post Milo entered his hardest chemo phase one day after Olivia was born. Remember I said we were busy? Well, it was the worst one by far. He lost the remainder of his hair, shed quite a few pounds and had to have numerous blood and platelet transfusions. It was hard, but we knew it was coming and we were prepared. Then shortly after we moved he entered his final phase - Maintenance phase. It was a time of celebration. He is not done, not even close, but things are so much better. Maintenance phase will continue for the rest of his treatment which will finish approx May 2022.  He still takes chemo daily and has clinic visits, but the drugs are mild in comparison to the gaultlet he went through. He will continue to have clinic visits for blood work every couple of weeks and IV chemo once a month. So, our hospital visits are fewer, the drugs are milder, and so far (knock on wood), we’ve stayed out of the emergency room. 

Since starting Maintenance Milo looks and seems to be more like himself. He is happy, energetic, funny, silly and growing his hair back! He has been rocking online kindergarten, scooting around our neighborhood, sledding in the snow, and being an awesome 5 year old. 

Happy holidays to you all and let’s hope 2021 is a better and brighter year!

Our new address:

273 Woodside Circle
Fairfield, CT 06825