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Apr 28-May 04

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It has been 14 weeks since Miles 2nd open heart surgery. Today was our 3 month post-op check-up with Dr. Daniels. 

Sitting in the echo room, watching the tech assess his heart always brings me back to his original diagnosis day more than 14 years ago. While I didn't fully know what was wrong, I knew his heart wasn't right. However, today, I watched the echo of my tall son who hardly fits on the echo bed. I could clearly see that his heart was right, that it was a whole functioning heart. It was beautiful.

In these past 98 days, his heart has continued to heal itself. It is actually getting smaller (to a normal size) and they are noticing normal changes in his heart circuitry as well. These are amazing results as we were told it could take 2-3 years for this. 

We will see cardiology annually now. 

We learned once there is a vaccine for his age group he should be able to recieve it pretty early in the process. 

Finally, we are excited to report this week he will be trying out for his middle school baseball team. 

Thank you for your continued support.

 

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