Michael’s Story

Site created on September 12, 2021

Welcome. Michael was diagnosed with Multiple Myeloma at the beginning of the summer. Since then, cancer has been a low-key presence in our daily lives. In some ways, the hardest part of this has been keeping all our people updated. Moving forward, various members of our family will be using this platform to circulate information, share thoughts, and clarify any misconceptions. And, we hope that this will be a convenient way for you to send messages of love and support. Thank you for checking in.  

Newest Update

Journal entry by Mike P

Today is day 148 (post stem cell transplant) and I am feeling back to normal. I’m officially in remission, which is a great way to celebrate Myeloma Awareness Month.

I am seeing my hematologist once a month for maintenance treatments. While these visits will gradually decrease, I’ll continue to have regular blood work done to ensure that all my numbers stay on track. I am still awed by the miracles of science and I feel grateful that so many advances have been made in the treatment of multiple myeloma.  


Many states, including New Jersey, lifted their mask mandates and my synagogue did as well. After two years, being able to see faces is wonderful! My doctors have advised me to continue to mask when I am in groups of people. Even though I was able to get another COVID vaccine after my stem cell transplant, I’ll be at risk for many other illnesses for about a year. 


Since Yom Kippur, and even once I was admitted to the hospital in October, there has not been a day without emails, texts, or phone calls from you. Not only did I continue to work with so many, both on personal matters and on synagogue issues, but I was overwhelmed when you reached out to support me. The systems we set up in response to the pandemic ended up being instrumental in keeping me connected and safe through this time. Our interactions have helped tremendously in my healing. 


Last night we celebrated Purim, one of the most joyous and raucous Jewish holidays. Hundreds of people, from young children to seniors, many in costume, came to MJC to hear the story of Queen Esther. It made me unbelievably happy to see so many having fun at the synagogue, to feel the cheerful energy, and to finally celebrate in person. I am eagerly looking forward to countless years of community celebrations. 


Peace out

RMP

 
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