Yesterday we had a really fun day together as a family! We took the kids to Nickelodeon Universe, the Crayola Experience, and did mini golf at the Mall of America. The kids had a really fun time and I think we sufficiently wore them out! Haha

We stayed at Matt’s parents’ house the last couple of nights and this morning I was able to catch part of Matt’s mom’s Rock Steady Boxing class with her and her fellow Parkinson’s warriors-they are an inspiration in tenacity when facing adversity for sure!  Matt, Micah, and I then headed back down to Rochester for Micah’s neurology appointment. 

Dr. T concurred that the EEG results were very reassuring and that they were the best EEG results we’ve seen for Micah in a while so we will leave his medication as is right now. We updated him on everything and we talked about the potential for the orthopedic surgery for Micah on the horizon and Dr. T didn’t have any qualms about that.  Dr. T is going to consult with Mayo’s pediatric neurogeneticist to see if he has any advice for us moving forward in regards to Micah’s de novo gene variation and that potentially being a cause for his symptoms. Dr. T did Micah’s physical exam and we will plan to see him again in a year for another EEG and another annual neurology check in. This wraps up our 24th trip to Mayo Clinic! We had planned to stay another night at Matt’s parents’ house and leave in the morning, but with the potential for bad weather tomorrow, we decided to power through tonight and get home late. 

As always, thank you for your kind thoughts and prayers! ❤️