Maya (Logan & Jill)’s Story

Site created on January 26, 2022

Welcome friends & family! We decided to create this page to keep our loved ones updated with Maya during her heart journey. If you are unfamiliar with Maya’s condition we were told in December 2021 that Maya has a congenital heart defect called Tetralogy of Fallot with pulmonary atresia. This means she has 4+ heart defects that impact her heart function/anatomy & does not allow oxygenated blood to reach her lungs. Our beautiful girl was born on March 25, 2022 & had a stent placed on March 30th to give her more time to grow bug & strong prior to her heart repair surgery. We are thankful that we have her diagnosis prior to birth, and have been blessed with very talented doctors/surgeons who are ready to take great care of her. Her open heart surgery will happen sometime around September/October 2022.

Maya was also diagnosed with 22q11 deletion syndrome, which is a micro-deletion in the chromosome 22. This syndrome is what caused her heart defect. There is a list of potential impacts that are related to this condition & it effects every person differently. Some children/adults experience very little impacts, and some experience a more severe diagnosis. Although some of the effects from this condition cannot be seen on scans, so far the only  "side effect" we are physically seeing from her 22q11 is her heart defects. As far as they can tell (from various testing/scans), Maya has a healthy immune system, digestive system (apart from bad reflux), kidneys, etc.

We know she has so many people praying for her & for our family and it means so much to know how loved and supported she is. We are so excited to help Maya thrive throughout her life and to show her just how special she is to our family. 



-Logan & Jill 

Newest Update

October 25, 2023

Journal entry by Maya Brawley —

We are celebrating Maya’s first Heartiversary today! We are so thankful for such a healthy year & are so proud of Maya for how far she has come since last October. A date that was filled with so many fears and anxieties is now a day of celebration🫀🎉 

Happy Wednesday ♥️

Read More of the journal titled "October 25, 2023"
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